Table 4.
Match (step 1: patient score + narrative); concordance, discordance and unclear (step 2: patient and clinician score + narrative)
| HLQ scale | Patient-clinician dyads per scale (N) | Items per scale | Total patient-clinician item-response pairs | N (%) Match (step 1) | N (%) Concordance (step 2) | N (%) Discordance (step 2) | N (%) Unclear (step 2) |
|---|---|---|---|---|---|---|---|
| 1. Feeling understood and supported by healthcare providers | 9 | 6 | 54 | 51 (94%) | 43 (80%) | 8 (15%) | 3 (5%) |
| 2. Having sufficient information to manage my health | 9 | 7 | 63 | 62 (98%) | 38 (60%) | 24 (38%) | 1 (2%) |
| 3. Actively managing my health | 9 | 5 | 45 | 41 (91%) | 31 (69%) | 10 (22%) | 4 (9%) |
| 4. Social support for health | 7 | 5 | 35 | 35 (100%) | 17 (49%) | 17 (49%) | 1 (3%) |
| 5. Appraisal of health information | 7 | 6 | 42 | 41 (98%) | 28 (67%) | 10 (24%) | 4 (10%) |
| 6. Ability to actively engage with healthcare providers | 9 | 5 | 45 | 45 (100%) | 19 (42%) | 25 (56%) | 1 (2%) |
| 7. Navigating the healthcare system | 9 | 6 | 54 | 48 (89%) | 32 (59%) | 14 (26%) | 8 (15%) |
| 8. Ability to find good health information | 7 | 5 | 35 | 30 (86%) | 15 (43%) | 12 (34%) | 8 (23%) |
| 9. Understand health information well enough to know what to do | 7 | 5 | 35 | 34 (97%) | 14 (40%) | 13 (37%) | 8 (23%) |