Table 6.

Examples of patient-clinician discordance for Themes 3 and 4

Theme 3. Different expectations and criteria for assigning HLQ scores	Patients	Clinicians
Sub-theme 3a) Action is a more important criteria for clinicians than for patients
Scale 3. Actively managing my health	P105 (Agree) There is not much else to do except to try to get better.	C105 (Strongly Disagree) He actually doesn’t do anything that he says he might do.
Scale 9. Understand health information well enough to know what to do	P115 (Quite Easy) They tell you what to do.	C115 (Quite Difficult) I don’t know whether it is more that she is just not willing to follow the advice. She may understand it but is not willing to act on it.
Sub-theme 3b) Patients don’t always know what they don’t know
Scale 6. Ability to actively engage with healthcare providers	P103 (Quite Easy) If I don’t tell them [doctors] my problems, how can I expect them to give the right advice or help me? If I’m not honest, what’s the point in going?	C103 (Quite Difficult) I think it almost might be Very Difficult, he has limited understanding about his difficulties and finds it difficult to help doctors to understand. He is not insightful about his health issues.
Scale 6. Ability to actively engage with healthcare providers	P112 (Quite Easy) Yep. Most doctors are quite understanding.	C112 (Quite Difficult) Because she doesn’t ask prying questions. She will be told the information but doesn’t have a discussion. She might check it on the Internet but doesn’t talk with doctors.
Scale 6. Ability to actively engage with healthcare providers	P116 (Very Easy) I can pretty much discuss anything.	C116 (Quite Difficult) She couldn’t sit with the discomfort about what she needed to do. She wanted to ignore her condition and pretend it would go away. She wanted to distract or make a joke if the talk got too serious.
Scale 9. Understand health information well enough to know what to do	P113 (Quite Easy) That’s easy, no problem	C113 (Quite Difficult) I’m not sure what his comprehension is but I think it is not that high. He gets mixed up a bit with fairly simple instructions about how many times to take a tablet.
Sub-theme 3c) There are different points of comparison (providers compare across patients, patients compare across providers)
Scale 7. Navigating the healthcare system	P116 (Quite Easy) [About knowing the best care for her] It’s the same thing every time; the right medication, 10 days in hospital on this drug, and then home.	C116 (Quite Difficult) Back then her decision making wasn’t that great. She would head for the hospital. It was all very reactive – wait till she gets sick then get help.
Sub-theme 3d) There are different expectations for support when ill
Scale 4. Social support for health	P102 (Strongly Disagree) People say they’ll help but when the time comes, they don’t.	C102 (Agree) [She has] a lot of health practitioners and she’s got her mother, she can rely on her mother.
Scale 4. Social support for health	P107 (Agree) I have support from everybody… they come running.	C107 (Disagree) If they have a fight then they drop right off. Support is a bit ad hoc and always a drama. It is not strong support because it is not consistent.
Scale 4. Social support for health	P111 (Strongly Agree) Well, I ring an ambulance if I need help.	C111 (Disagree) She has some but she would really have her mother as her main support.
Theme 4. Different perspectives about a patient’s reliance on healthcare providers	Patients	Clinicians
Scale 7. Navigating the healthcare system	P116 (Quite Easy) But only though my carer lady [HARP clinician]	C116 (Quite Difficult) HARP can tell her. She wouldn’t go to the library, wouldn’t look it up on the computer.
Scale 8. Ability to find good health information	P104 (Quite Easy) I get it straight from the doctor’s surgery. He’s got boards up [with information].	C104 (Quite Difficult) The response would be Cannot Do if he was on his own but with the help of the healthcare providers he can do it.