Table 1.
Characteristics of participants in the three focus groups and individual interviews
| Characteristic | Focus groups (n = 16) | Individual interviews (n = 11) |
|---|---|---|
| Sex | ||
| Female | 14 | 9 |
| Male | 2 | 2 |
| Mean age, years (range) | 39.7 (29–50) | 41.1 (31–48) |
| Level of educationa | ||
| Low | 0 | 0 |
| Medium | 1 | 4 |
| High | 15 | 7 |
| Religion | ||
| None | 12 | 9 |
| Christian | 4 | 2 |
| Mean number of children (range) | 2 (0–3) | 2 (1–4) |
| Number of children with DS | ||
| 0 | 2b | 0 |
| 1 | 13 | 10 |
| 2 | 1 | 1 |
| Mean age of child with DS, years (range) | 6 (1–17) | 6 (1–16) |
| Prenatal screening during pregnancy of child with DS | ||
| Yes: | ||
| Low-risk FCT result | 2 | 2 |
| Low-risk FCT result, invasive test after ultrasound abnormality | 1 | 0 |
| High-risk FCT result, no invasive test | 2 | 0 |
| High-risk FCT result, invasive test | 0 | 1 |
| FCT (result unknown) | 1 | 0 |
| No: | ||
| Not interested | 5 | 7 |
| Not offered | 3 | 0 |
| Declined screening because of the costs | 0 | 1 |
| Not applicable: | 2b | 0 |
DS=Down syndrome, FCT First-trimester combined test
aLow: elementary school, lower level of secondary school, lower vocational training; Medium: higher level of secondary school, intermediate vocational training; High: higher vocational training, university
bTwo relatives of children with DS, a sister and an aunt