What matters most to older adults with advanced CKD and those who care for them near the end of life? |
1. End-of-life experience of older adults with advanced kidney disease |
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2. Roles, experiences, and perspectives of those who care for older adults with advanced kidney disease |
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3. Research priorities of older adults with advanced kidney disease and their caregivers |
What are the most effective approaches to supporting older adults and their caregivers to navigate complex treatment decisions? |
1. Interventions to support older adults and caregivers facing decisions surrounding dialysis initiation. |
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2. Tailored shared decision-making approaches to meet the needs of older adults and their caregivers. |
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3. The optimal use of prognostic information in the decision-making process. |
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4. Advance care planning interventions that facilitate provision of end-of-life care consistent with patients' goals and preferences. |
How do we reconfigure the health system to ensure that older adults with advanced CKD receive care that supports their goals and is consistent with their values and preferences? |
1. Optimal use of symptom assessment tools |
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2. The effect of different payment models and/or pay-for-performance incentives on uptake of palliative care, and effectiveness of different models for delivering palliative care |
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3. Measure outcomes of conservative, nondialytic care. |
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4. The effectiveness of concurrent dialysis and hospice care in dying patients |