Table II.
Field Study Participant Demographics
| Parent report |
||
|---|---|---|
| Participant characteristics | Proxy | Self |
| Index cases (n) | 76a | 94b |
| Parents (n) | 103 | 130 |
| Mother | 67.0% | 65.4% |
| Father | 33.0% | 34.6% |
| Parent race | ||
| White | 69.7% | 71.3% |
| Asian or Pacific Islander | 7.9% | 9.6% |
| African American | 3.9% | 3.2% |
| American Indian or Alaska Native | 1.3% | 1.1% |
| Middle Eastern | 1.3% | 1.1% |
| Other or Mixed race | 14.5% | 12.8% |
| Did not answer | 1.3% | 1.1% |
| Parent ethnicity: Hispanic | 13.2% | 11.7% |
| Parent education | ||
| Less than high school | 2.6% | 3.2% |
| High school or equivalent | 11.8% | 16.0% |
| Some college | 22.4% | 22.3% |
| Bachelor’s degree or equivalent | 31.6% | 26.6% |
| Graduate or professional degree | 30.3% | 30.9% |
| Did not answer | 1.3% | 1.1% |
| Child gender of rearing | ||
| Boy | 57.9% | 56.4% |
| Girl | 42.1% | 42.6% |
| Unassigned or did not answer | 0% | 1.1% |
| Child age, years (mean, SD) | 4.54 (1.46) | 4.02 (1.77) |
| Child DSD category & diagnosis | ||
| Sex chromosome (n, %) | 4 (5.3%) | 4 (4.3%) |
| 46,XY (n) | 45 | 59 |
| Disorder of gonadal (testicular) development | 6.6% | 7.4% |
| Disorder of androgen synthesis or action | 10.5% | 12.8% |
| Other 46,XY DSD (e.g., proximal hypospadias) | 42.1% | 42.6% |
| 46,XX (n) | 27 | 31 |
| Disorder of gonadal (ovarian) development | 1.3% | 1.1% |
| Androgen excess | 30.3% | 27.7% |
| Other 46,XX DSD | 3.9% | 4.3% |
| Genital atypicality rating (0–100) (mean, SD) | 37.71 (20.46) | 37.58 (20.56) |
| Number of surgical procedures | ||
| Mean (SD) | 2.15 (1.72) | 1.96 (1.62) |
| Range | 0–8 | 0–8 |
aParents of children aged 2–6 years.
bParents of children from birth to 6 years.