1. Now I'd like you to think back to when you first learned that you have sleep apnea. Visualize yourself back in the room at a doctor's office, on the telephone, or wherever it was that you learned that you have sleep apnea.
What type of conversation, if any, did you have with your provider about your diagnosis? What did your healthcare provider talk with you about in terms of the options available for dealing with this new diagnosis, sleep apnea? What was your impression of the interaction? What roles did family and friends play in these interactions and decisions? Ideally, what information would you have wanted to be conveyed about your new diagnosis?
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2. I'd like you to think back to the weeks or months following your initial diagnoses with sleep apnea. Some of you may have started a treatment for sleep apnea, while others might not have. Tell me about what you did? How did that go?
For those of you who received medical equipment like CPAP or a dental device, how did you feel about the treatment when you first received your equipment? Being diagnosed with a new medical condition and having to use new equipment (like CPAP or a dental device) can impact the people around you too. How did the other people in your household – or other people in your life – react to your CPAP or a dental device? What makes using sleep apnea equipment regularly easy? Difficult? What did you think would change once you started using CPAP or a dental device? Now that you have some experience with it, can you think of anything that you would have wanted to know before you got started with treatment?
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3. We're developing an information tool to help patients understand the different options available to people with sleep apnea. The initial version will be a pen and paper version. It will contain pictures and text about the risks and benefits of different options. Questions within the tool will encourage patients to carefully consider whether each option matches their own personal healthcare goals. The tool is not meant to be a substitute for discussions with healthcare providers. Rather, it is a tool to encourage patients and healthcare providers to make informed decisions about healthcare, working together.
What are your thoughts on a sleep apnea information tool like the one I just described?
How might it be used? What are your thoughts about a tool like this for obstructive sleep apnea? We're conducting today's session to help us develop an information tool for older adults with newly diagnosed sleep apnea. I'd like to get your opinion on a few different approaches [provide examples].
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