Table 1.

Self‐reported characteristics of interview participants (N = 38)

Characteristics	Number of participants
Male	20
Female	18
Age
18–44 years	5
45–64 years	17
65+ years	16
PPI rolea
Patient	24
Carer	9
Dual patient and carer	1
Member of the public	4
Experience of involvement in research
5 years or less	13
5–10 years	12
More than 10 years	13

^a*Participants preferred many different role names, but for the purposes of this paper, we have grouped them into these four categories.