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. 2017 May 11;31(Suppl 1):S1–S20. doi: 10.1038/eye.2017.53

Table 6. Revealing extracts, see Supplementary Information—Patient Experience and Adherence in DMO.

Perspectives, in the words of consultant retina specialists
○ 'I always look to see what kind of diabetic patient they are. Their treatment history, how their HbA1c is controlled and what they do for themselves to manage their diabetes. It will tell me a lot about their diabetic macular oedema.'
— Consultant Retina Specialist
○ 'We really need more ability to intervene with diabetes patients to encourage behaviour change, but we just don't have the time or resources or links to other services. All I can really do is tell them what they should be doing and hope they listen.'
— Consultant Retina Specialist
Perspectives, in the words of DMO patients
○ 'The best thing I ever did was the Dose Adjustment For Normal Eating (DAFNE) course. I learnt about diet and exercise and how to manage my insulin and my diabetes.'
— Compliant DMO patient
○ 'I was really upset when I got the diagnosis (of diabetes), I didn't want to have a disease and certainly not one that would ruin my life.'
— Non-compliant DMO patient
Experience of the DMO journey, in the words of DMO patients
○ 'The reaction in my eyes was caused by a dramatic drop in my glucose levels. I was told it may have dropped too quickly and affected the vessels in my eyes.'
— Compliant patient
○ 'I was in bits when they told me I had DMO. It is bad enough being diabetic and now I could go blind! I felt like my life had ended and then they tell me I needed to have an injection in my eye and that was terrifying beyond belief.'
— Non-compliant DMO patient