Table 5.
Needs Assessment
| Answers | N (%) | |
|---|---|---|
| What are your needs regarding transition? | Center needs more tools/resources to implement transition. | 51 (67.1) |
| Development of consensus criteria, with specific guidelines would be useful to guide and standardize the transition process. | 45 (59) | |
| No needs. We are satisfied with the way our center does transition. | 11 (14.5%) | |
| No needs. Our staff is properly trained to deal with transition. | 11 (14.5) | |
| No needs. Our center has sufficient resources and staff to deal with transition. | 8 (10.5) | |
| No needs. Our center devotes sufficient time for transition | 5 (6.6%) | |
| Answers | N (%) | |
| What are the barriers for successful transition? | Lack of general practitioners to assist the transition process. | Does not difficult: 16 (21,0) |
| Difficult a bit: 29 (38.2) | ||
| Difficult a lot: 30 (39.5) | ||
| No answer: 1 (1.3) | ||
| Lack of rheumatology centers available for transitioned patients. | Does not difficult: 9 (11.9) | |
| Difficult a bit: 10 (13.1) | ||
| Difficult a lot: 56 (73.7) | ||
| No answer: 1 (1.3) | ||
| Emotional attachment between the pediatric rheumatology team and the patient/family. | Does not difficult: 4 (5.3) | |
| Difficult a bit: 32 (42.1) | ||
| Difficult a lot 40 (52.6) | ||
| Lack of patients’ understanding about their disease. | Does not difficult: 13 (17.1) | |
| Difficult a bit: 36 (47.4) | ||
| Difficult a lot: 27 (35.5) | ||
| The patient’s inability to take responsibility for their own care. | Does not difficult: 5 (6.6) | |
| Difficult a bit: 36 (47.4) | ||
| Difficult a lot: 34 (44.7) | ||
| No answer: 1 (1.3) | ||
| Lack of devoted time for transition in pediatric rheumatology centers. | Does not difficult: 4 (5.3) | |
| Difficult a bit: 42 (55.3) | ||
| Difficult a lot: 30 (39.4) | ||
| Lack of knowledge and training of pediatric rheumatology team. | Does not difficult: 9 (11.8) | |
| Difficult a bit: 37 (48.7) | ||
| Difficult a lot: 29 (38.2) | ||
| No answer: 1 (1.3) |