Table 2.
1. What do you know about biobanking?
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Read the following description: Biobanking is the process of collecting and storing specimens of human fluids (like blood) and tissues for research. The specimens are often used to develop or test a treatment for diseases such as cancer. Researchers use specimens from people with similar traits for their studies. (For example, they might use only blood samples that have been donated by Mexican American males, age 18-25, who have smoked for 10 years or more.) Having specimens from people of different races and ethnicities, different ages, and from men and women helps to ensure that the treatments and tests developed will be appropriate for everybody. There are not as many specimens from Hispanics as there are for other groups. |
2. Has anyone ever asked to collect or store your blood or other human tissue for research?
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3. How do you feel about people having their blood and other tissue collected and stored for research? And why?
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4. How do you feel about the idea of you blood or tissue being stored for a long time? |
5. Do you think you would be willing to have your blood or other human tissue collected and stored for research? Why or why not? |
6. What things concern or worry you about having your blood or other tissue collected and stored for research?
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7. What would make you less willing to have your blood or other tissue collected and stored for research?
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8. What would make you more willing to have your blood or other tissue collected and stored for research?
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9. Do you think it is important for blood and other tissue to be collected for research? Why or why not? |
10. What would be some good things about having your blood and other tissue collected and stored for research?
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11. If you have children, would you consent to having their blood collected and stored for research? Why or why not? |
12. How do you think others in your community feel about collecting and storing blood and other tissue for research? |
13. Is there anything we didn’t discuss about biobanking that you would like to tell us or think we should know? |