Table 2.

Factors associated with celiac care patient satisfaction

Variable	Satisfied (%)	Not Satisfied (%)	p-value
Approximately how many years ago were you diagnosed?	10.5 yrs	9.1yrs	0.21
Length of symptoms prior to diagnosis?
< 5 years	99/132 (75%)	33/132 (25%)
≥ 5 years	62/97 (64%)	35/97 (36%)	0.07
Presenting symptoms?
None/Screening	16/18 (89%)	2/18 (11%)
Classic Diarrhea/Non-Classical	98/148 (66%)	50/148 (34%)	0.09
Other (OA, anemia)	47/63 (75%)	16/63 (25%)
Who do you follow with for celiac disease management?
Primary Care Physician	44/65 (68%)	21/65 (32%)	0.59
Registered Dietitian/Nutritionist	16/21 (76%)	5/21 (24%)	0.54
Gastroenterologist	60/82 (73%)	22/82 (27%)	0.48
Celiac Specialist	76/94 (81%)	18/94 (19%)	≤0.01*
Naturopath	2/7 (29%)	5/7 (71%)	0.03*
I don’t have follow-up	14/34 (41%)	20/34 (59%)	≤0.01*
Other	2/4 (50%)	2/4 (50%)	0.58
Who do you follow with for celiac disease management?
Follow with ≤ 1 provider	117/169 (69%)	52/169 (31%)	0.55
Follow with > 1 provider	44/60 (73%)	16/60 (27%)
Is management of celiac disease addressed at least once per year by a physician?
Yes	125/145 (86%)	20/145 (14%)	≤0.01*
No	22/50 (44%)	28/50 (56%)
How often have the emotional/psych impacts of living with celiac disease been addressed?
≥ Once	89/107 (83%)	18/107 (17%)	≤0.01*
Never	58/88 (66%)	30/88 (34%)
Are celiac antibody levels checked yearly?
Yes	98/111 (88%)	13/111 (12%)	≤0.01*
No	37/66 (56%)	29/66 (44%)
If not followed by nutritionist/dietitian ever referred to one?
Yes	103/143 (72%)	40/143 (28%)	0.01*
No	22/43 (51%)	21/43 (49%)
Yearly bloodwork? (Hgb, Ca, Fe, etc)
Yes	147/197 (75%)	50/197 (25%)	≤0.01*
No	13/27 (48%)	14/27 (52%)
Has a medical professional discussed how celiac disease can impact your bone health?
Yes	133/178 (75%)	45/178 (25%)	0.01*
No	22/40 (55%)	18/40 (45%)
Offered or had a bone density scan?
Yes	129/181 (71%)	52/181 (29%)	0.37
No	27/42 (64%)	15/42 (36%)
Persistent symptoms despite GFD?
No	89/116 (77%)	27/116 (23%)	0.01*
Yes	61/100 (61%)	39/100 (39%)
Repeat EGD with biopsy since diagnosis?
Yes	103/137 (75%)	34/137 (25%)	0.05*
No	58/92 (63%)	34/92 (37%)
Offered or received flu vaccine this year?
Yes	148/206 (72%)	58/206 (28%)	0.13
No	13/23 (57%)	10/23 (43%)
Offered/Received Pneumovax?
Yes	59/81 (73%)	22/81 (27%)	0.44
No	82/121 (68%)	39/121 (32%)
Member of celiac disease support group?
Yes	51/66 (77%)	15/66 (23%)	0.14
No	110/163 (67%)	53/163 (33%)
Have you been an active member of the celiac disease support group in the last year?
Yes	21/27 (78%)	6/27 (22%)	0.90
No	29/38 (76%)	9/38 (24%)
Do you go to a specialized celiac disease care center?
Yes	82/103 (80%)	21/103 (20%)	≤0.01*
No	79/126 (63%)	47/126 (37%)
Satisfied with primary care physician?
Yes**	130/165 (79%)	35/165 (21%)	≤0.01*
No**	24/55 (44%)	35/55 (56%)
Satisfied with GI or celiac disease doctor?
Yes**	146/193 (76%)	47/193 (24%)	≤0.01*
No**	4/17 (24%)	13/17 (76%)
Satisfied with my nutritionist/dietitian?
Yes**	47/50 (94%)	3/50 (6%)	≤0.01*
No**	18/29 (62%)	11/29 (38%)
Satisfied with my doctor who diagnosed my celiac disease?
Yes**	127/165 (77%)	38/165 (23%)	≤0.01*
No**	34/64 (53%)	30/64 (47%)
My physician who cares for my celiac disease is readily available if needed?
Yes**	130/149 (87%)	19/149 (13%)	≤0.01*
No**	17/46 (37%)	29/46 (63%)
The nutritionist/dietitian who cares for your celiac disease is available if needed?
Yes**	66/73 (90%)	7/73 (10%)	≤0.01*
No**	12/24 (50%)	12/24 (50%)
The physician caring for my celiac disease spends ample time managing my celiac disease needs?
Yes**	125/134 (93%)	9/134 (7%)	≤0.01*
No**	22/61 (36%)	39/61 (64%)
I feel that my physician who cares for my celiac disease is knowledgeable about celiac disease?
Yes**	126/149 (85%)	23/149 (15%)	≤0.01*
No**	21/46 (46%)	25/46 (54%)

^*Indicates statistical significance

Yes**-Strongly agree/Agree; No**-Strongly Disagree/Disagree/Neutral