Table 1.
Characteristics of Reviewed Articles
| Authors | Location of study | Aim(s) | % of patients in AYA age range | Age group patients | Study design/data collection method | |
|---|---|---|---|---|---|---|
| Articles from studies with family members of patients aged 16–24 | Barling et al.29 | Australia | Describe the reality of hospitalization in the experience that accompanies the stages of diagnosis, treatment, dying, and death of an AYA from the perspective of informal carers. | 87.5% | 14 pts. aged 16–23 | Open-ended interviews |
| Cataudella and Zelcer32 | Canada | Explore the psychological experiences of children with brain tumors at the end of life from parental perspectives | 16.66% | 4 patients aged 16–19 | Semistructured focus group interviews | |
| Gaab et al.34 | New Zealand | Describe caregiver's experiences of talking about their children's prognosis | 21.05% | 4 pts. aged 16–18 | Semistructured interviews | |
| Montel et al.42 | France | Investigate the place of death of adolescents and young adults and factors influencing the choice of place of death | 50% | 19 aged 16–24 | Qualitative interview study | |
| Articles from studies with patients aged 16–24 | Dahlin and Heiwe33 | Sweden | Elicit perceptions and experiences of physical therapeutic interventions from patients in palliative cancer care | 16–24 = 5.88%; 25–40 = 5.88% | 1 16–24; 1 25–40 | Semistructured interviews |
| Doumit et al.25 | Lebanon | Uncover the lived experience of Lebanese oncology patients receiving palliative care | 10% | 1 pt. aged 21 | In-depth semistructured interviews with observation field notes | |
| Williams40 | United States of America | Describe the experience of existential suffering among low socioeconomic (SES) patients dying from cancer | up to 24 = 3.03%; 25–40 = 30.30% | 1 pt. = 24; 10pts 25–40 | In-depth open-ended interviews | |
| Articles from studies with patients aged 25–40 years | Almack et al.35 | United Kingdom | Explore if, how, and when advance care planning conversations were facilitated and documented | (based on 9 pts. with cancer) 11.1% | 1 pt. aged 33 | Exploratory case study using interviews |
| Brom et al.37 | Netherlands | Explore cancer patients' preferences and the reasons for patients' preferred role in treatment decision-making at the end of life. | 11% | 3 pts. under 35 years and 3pts. aged 36–50 | In-depth interviews | |
| Hoff et al.45 | Sweden | Investigate patients' views of information during the trajectory of their disease and the different reactions among patients | 8.33% | 1 pt. under 40- no specific age given | Recurrent semistructured interviews | |
| Milberg et al.28 | Sweden | Explore palliative home care as a secure base based on patients and family members' experiences | 8.33% | 1 pt. aged 35 | Interviews | |
| Articles from studies with patients aged 25–40 years | Nedjat-Haiem36 | United States of America | Explore perceptions of the barriers to engaging in EOL decision-making discussions specifically among low-income Latinos living with an advanced life-threatening cancer condition | 22.22% | 2 pts. (35, 39) | In-depth semistructured interviews, patient observations |
| Nilmanat et al.23 | Thailand | Describe the experience of living with suffering for patients with terminal advanced cancer in Thailand | 6.66% | 1 pt. 30 | Longitudinal study using series interviews (based on the health and willingness of participant) and participant observations, field notes | |
| Philip et al.31 | Australia | Understand the lived experiences of patients and perceptions of current health services | 10% | 1 pt. aged 40 | In-depth interviews | |
| Rydahl-Hansen24 | Denmark | Describe the experienced suffering among hospitalized patients with incurable cancer | 8.33% | 1 pt. was 40 years old | Series of semistructured interviews, and observations | |
| Sand et al.27 | Norway | Explore the experience of using medicines for patients with far-advanced cancer with a short life expectancy | 6.66% | 1 pt. aged 39 | Interviews | |
| Volker and Wu.26 | United States of America | Explore the meaning of control and control preferences in racially and ethnically diverse patients with cancer | 15% | 3 pts. (40, 39 & 34) | In-depth interviews | |
| Worth et al.30 | United Kingdom | Explore experiences and perceptions of out-of-hours care of patients with advanced cancer | 6.25% | 2 pt. under 40 (aged 30–40) | Individual interviews with patients and focus groups with patients and carers |