Table 3.
Percentage of patients with improved HRQL by 1 standard error of measurement or more
| PedsQL™ HRQL Score | 1 week post discharge | Steady state 1–3 months post-discharge | ||||
|---|---|---|---|---|---|---|
| Child self-report | N | SEM | Percentage with ≥1 SEM improvement | N | SEM | Percentage with ≥1 SEM improvement |
| Sickle cell disease module | ||||||
| Total Score | 139 | 3.94 | 65.5 | 153 | 3.80 | 66.0 |
| Pain and Hurt | 137 | 7.43 | 62.8 | 152 | 7.88 | 55.9 |
| Pain Impact | 139 | 7.00 | 64.0 | 151 | 7.50 | 58.9 |
| Pain Management and Control | 137 | 10.09 | 50.4 | 151 | 10.72 | 51.0 |
| Worry I | 137 | 9.74 | 47.4 | 151 | 9.68 | 60.3 |
| Worry II | 120 | 14.55 | 33.3 | 130 | 13.59 | 24.6 |
| Emotions | 138 | 12.89 | 40.6 | 152 | 14.03 | 42.8 |
| Treatment | 137 | 9.61 | 35.0 | 151 | 9.99 | 42.4 |
| Communication I | 136 | 12.27 | 33.1 | 149 | 11.49 | 30.2 |
| Communication II | 133 | 13.51 | 46.6 | 144 | 13.11 | 50.0 |
| Fatigue module | ||||||
| Total Score | 134 | 5.72 | 54.5 | 144 | 5.49 | 54.2 |
| General Fatigue | 135 | 8.17 | 55.6 | 145 | 8.28 | 56.6 |
| Sleep/Rest Fatigue | 134 | 9.53 | 45.5 | 144 | 9.46 | 45.8 |
| Cognitive Fatigue | 132 | 8.20 | 47.0 | 142 | 8.04 | 45.1 |
| Generic module | ||||||
| Total Score | 132 | 5.09 | 59.1 | 141 | 5.13 | 57.4 |
| Physical Summary | 133 | 8.07 | 53.4 | 142 | 8.03 | 54.2 |
| Psychosocial Summary | 131 | 6.28 | 55.0 | 139 | 6.39 | 51.8 |
| Emotional Functioning | 131 | 9.96 | 55.7 | 140 | 9.59 | 55.0 |
| Social Functioning | 129 | 9.62 | 42.6 | 137 | 9.33 | 44.5 |
| School Functioning | 120 | 10.22 | 40.0 | 131 | 11.09 | 35.9 |