TABLE 2.
Citation | Setting | Sample | Mean disease duration, years |
Data collection methods |
Analytic strategy |
---|---|---|---|---|---|
Ahlmen et al., 2005 | 4 Swedish academically affiliated rheumatology clinics |
25 RA patients | 14 (range: 3–44) | 4 focus groups; recording and transcription |
Inductive thematic analysis |
Bergsten et al., 2011 | Swedish rheumatology hospital |
16 RA patients, | 14 (range: 2–42) | Exploratory interviews |
Grounded theory |
Bernatsky et al., 2010 | Canadian regional public health system w./academic affiliation |
18 RA patients; 13 family physicians; 14 rheumatologists; 14 therapists; 9 decision makers; 4 nurses |
15 focus groups | Qualitative content analysis |
|
Buitinga et al., 2012 | Dutch hospital outpatient rheumatology clinic |
16 RA patients | 12.9a (range: 1–39) |
3 focus groups; semi-structured guide; recording and transcription |
Qualitative coding according to ICF domains |
Carr et al., 2003 | 5 British clinical centres in urban areas |
39 RA patients | 12a (range: 2–26) |
5 focus groups | Interpretative phenomenological analysis |
Funahashi & Matsubara, 2012 | Japanese outpatient rheumatology clinic |
165 RA patients, treated with DMARDS |
Survey using measures designed to assess expectations and satisfaction with treatment |
Frequency calculation and chi-square test |
|
Heiberg & Kvien, 2002 | Norwegian county-based patient register |
1,024 RA patients | 12.7 (SD 11.1) | Survey using measures from Arthritis Impact Measurement Scales 2, Modified Health Assessment Questionnaire and visual analogue scale for pain and fatigue |
Distribution calculations; 2-sample t-tests; chi-square tests; logistic regression analyses |
Hewlett et al., 2005 | 3 British rheumatology centres in urban areas |
323 RA patients | 13.7 (SD 11.1) | Survey with ranking questions |
Factor analysis |
Hofmann et al., 2015 | Outpatient clinic in South-East England |
1st phase: 17 RA patients; 2nd phase: 22 RA patients |
Phase 1 sample: 11 (range: 3–44); phase 2 sample: N/A |
1st phase: 3 focus groups; 2nd phase: qualitative feedback on draft questionnaire |
Thematic content analysis |
Ishikawa et al., 2006 | Japanese rheumatology clinic, academic affiliation in urban area |
115 RA patients | 13.3 (SD 9.4) | Questionnaire completed post-clinical encounter |
Regression analyses |
Jacobi et al., 2004 | Dutch tertiary and secondary outpatient rheumatology clinics register |
683 RA patients | 10.7 (range: 1.5–57.8) |
Survey with ranking questions (quote-questionnaire method) |
Regression analyses |
Kristiansen et al., 2012a | 2 Danish hospitals | 11 RA patients | 5.9 (range: 0.2–27) |
2 focus groups | Qualitative content analysis |
Kristiansen et al., 2012b | 2 Danish hospital outpatient clinics |
32 RA patients purposively sampled |
5.9 (range: 0.27–27) |
6 focus groups | Qualitative content analysis |
Radford et al., 2008 | British rheumatology nurse specialist clinic |
11 RA patients, purposively sampled |
11.1a (range: 0.4–30) |
2 focus groups | Qualitative content analysis |
Robinson & Walker, 2012 | British National Health Service outpatient departments |
100 RA patients | 15.6 (range: 1–38) |
Structured interviews | Descriptive statistics |
Salt & Peden, 2011 | US rheumatology clinic, academic affiliation |
30 female RA patients, purposively sampled |
Semi-structured interviews |
Grounded theory | |
Sanderson et al., 2010a | Outpatient department at academically affiliated British hospital |
23 RA patients | 17.7 (range: 3–40) |
In-depth interviews | Grounded theory |
Sanderson et al., 2010b | 3 British outpatient rheumatology departments; British database of anti- tumour necrosis factor therapy patients; British psychological support database; British national RA foundation membership registry |
1st phase: 26 RA patients, purposively sampled; 2nd phase: 254 RA patients |
1st phase: 5 nominal groups with discussion 2nd phase: mailed surveys |
1st phase: qualitative analysis 2nd phase: Cronbach’s alpha coefficient calculation; principal component analysis; chi-square tests |
|
ten Klooster et al., 2007 | Dutch register of RA patients on a specific therapy |
173 RA patients | 9.9 95% CI | Survey assessment of health status with the Arthritis Impact Measurement Scales 2 at baseline, and 3 and 12 months |
Descriptive statistics; paired 2-tailed t-tests with Bonferroni correction; McNemar’s tests |
van Tuyl et al., 2015 | British medical centre; Dutch medical centre; Austrian medical centre |
47 RA patients | 8, 9b (range:1– 40) |
9 focus groups | Inductive thematic analysis |
Ward et al., 2007 | Outpatient department at a British teaching hospital |
25 RA patients | 13 (range: 2–32) | Structured interviews | Atheoretical content analysis |
Wen et al., 2012 | 4 Chinese medical centres; 1 Japanese medical centre; 1 US medical centre |
270 RA patients; 111 physicians |
Comparison of listed clinic visit priorities among RA patients and physicians |
Descriptive statistics; KJ-method analysis of free descriptions; analyses of agreement |
Calculated by A.S. from published data.
A mean of 8 years was reported in Table 1, a mean of 9 years was cited in the text.
CI, confidence interval; DMARD, disease-modifying antirheumatic drug; ICF, International Classification of Functioning, Disability, and Health; SD, standard deviation.