COPD-specific knowledge |
Anatomy and physiology |
“If you were running this for people who’d never been involved in patients with COPD you’d have to have longer than a day to teach them about the disease” [Occupational therapist, secondary care] |
Exacerbations and disease progression |
“Thinking about advanced disease […] that’s quite a shock and I don’t think we’re confident to discuss that with them” [Physiotherapist, secondary care] |
Exercise |
“I’m not an expert in exercising or anything like that so all of it really is stuff that I could probably do with a bit more in depth information on” [Respiratory nurse, secondary care] |
Sex and relationships |
“I think the area on relationships and talking about sex is [something] that a lot of people don’t cover and feel uncomfortable covering” [Nurse practitioner, primary care] |
Diet and eating |
“I wouldn’t be brilliant at food, trying to get patients to eat a nice healthy diet” [Respiratory nurse, secondary care] |
Breathing and inhaler techniques |
“It’s always good just to go over [inhaler techniques] with you to make sure you are right because things change and these are the sort of things you need to pass on to your patients” [Respiratory nurse, secondary care] |
Oxygen and traveling |
“People ask about taking oxygen on holiday and that’s normally something I have to go off and find out rather than just having the knowledge there” [Physiotherapist, secondary care] |
Awareness of resources |
“I never really know what’s out there for them [carers for people with COPD]” [Community respiratory nurse] |
Delivery of manual |
How to follow stages |
“What I would want to know is do they have to follow stage one, two, three and four or can they do stage one, look at stage three – can it be flexible?” [Respiratory nurse, secondary care] |
Action plan |
“The bit that I would want to see quite a lot more on is definitely the action plan, and about doing an action plan with the patient” [Nurse, secondary care] |
Outcome measures |
Administration |
“[With] the outcome measures, if you’ve not been involved in rehabilitation the chances are you won’t be familiar with how you do [them]” [Physiotherapist, secondary care] |
Interpretation |
“What would I be looking for to show that there had been a change? It’s just not something that we’d do” [Respiratory nurse, secondary care] |
Communication skills |
Confidence to listen |
“You need to be able to listen to the patient about what they want” [Occupational therapist, secondary care] |
Imparting information |
“A lot of the ideas that are second nature to you are absolutely brand new to patients” [Respiratory nurse, secondary care] |
Appropriate language |
“A lot of the terminology that is second nature to you is absolutely brand new to patients” [Nurse practitioner, primary care] |
Dealing with difficult emotions |
“I get a lot of anger from people who did give up smoking but […] five years down the line after quitting smoking they’ve still got a diagnosis of COPD and they didn’t realise that that was a potential issue” [Respiratory nurse, secondary care] |