1 |
Expecting others to listen or be available whenever the patient needs them. |
Patients have reported feelings of loneliness when visits from family and friends and conversations about their illness did not occur as often as expected [23,12]. |
1, 5, 7, 11, 13 |
2 |
Expecting a lack of understanding of cancer-related concerns. |
Patients have reported feeling lonely when they believed others misunderstood their cancer-related experiences and changes [13,12]. |
2, 8 |
3 |
Expecting that others will not understand existential thoughts. |
Many cancer patients have reported new existential thoughts, including a newfound awareness of their mortality and unpredictable future, after their diagnosis. Patients have reported feeling lonely when they perceived that others did not share their heightened awareness about mortality [13]. |
4, 10 |
4 |
Expecting sharing cancer-related concerns to burden others |
For some patients, a lack of cancer-related disclosure is motivated by a desire to protect others from distress. Some patients with this thought pattern experience distress and disconnection from others when they fail to discuss cancer-related concerns [13,12]. Relatedly, protective buffering (e.g., hiding concerns and worries in an attempt to prevent others from experiencing distress) [25] has been associated with poorer psychological adjustment and lower levels of relationship satisfaction in cancer patients [25,48]. |
3, 9 |
5 |
Expecting disclosure of their diagnosis or cancer-related concerns to worsen their relationships. |
Some patients withhold cancer-related information from others due to concerns that disclosing their health status would negatively change the way others interact with them [12]. For example, patients expect others to avoid them or show discomfort during conversations. Thus, whereas domain 4 focuses on cancer-related disclosure burdening others, domain 5 focuses on patients’ anticipated distress as relationships change following disclosure. However, many patients have reported that withholding cancer-related information led to feelings of isolation [12], consistent with social-cognitive processing theory [24,14]. Specifically, processing cancer-related information with others has been found to facilitate psychological adjustment [49,50,16], an opportunity not available to non-disclosing patients. |
6, 12, 14 |