Table 2.

Focus group guide.

If you knew then, what you know now, what would you have done differently? What was your understanding of your/your loved one’s lung disease? What changes in your/your loved one’s health status were most challenging to you? Did you feel prepared during the course of your/your loved one’s illness? Did you and your loved one ever talk about what you/he/she would want to happen in the event of hospitalization with a life threatening condition? Often we talk about hospice and palliative care to help manage a life limiting illness. Tell me what these words mean to you.