Table 1.
Patient characteristics at registration to the registry
| N (%) | |
|---|---|
| Total | 98 (100) |
| Age at diagnosis (years), median (range) | 72.0 (21.0–95.0) |
| Sex | |
| Males | 66 (67.3) |
| Females | 32 (32.7) |
| Country | |
| Austria | 2 (2.0) |
| Czech Republic | 7 (7.1) |
| Denmark | 3 (3.1) |
| France | 30 (30.6) |
| Germany | 7 (7.1) |
| Greece | 11 (11.2) |
| Italy | 2 (2.0) |
| Netherlands | 8 (8.2) |
| Poland | 2 (2.0) |
| Romania | 4 (4.1) |
| Sweden | 8 (8.2) |
| United Kingdom | 14 (14.3) |
| Haemoglobin (g/dL), mean (SD) | 10.5 (2.0) |
| WBC (109/L) mean (SD) | 4.9 (2.4) |
| Absolute neutrophil count (109/L) mean (SD) | 3.0 (2.0) |
| Platelets (109/l) mean (SD) | 183 (121) |
| WHO diagnosis provided at time of entry into the registry | |
| RA | 17 (17.3) |
| RARS | 20 (20.4) |
| RCMD | 40 (40.8) |
| RCMD-RS | 3 (3.1) |
| RAEB-1 | 14 (14.3) |
| 5q-syndrome | 4 (4.1) |
| IPSS Score | |
| Low | 344 (47.3) |
| Intermediate-1 | 345 (47.5) |
| Not known | 38 (5.2) |
RA refractory anaemia, RARS refractory anaemia with ringed sideroblasts, RCMD Refractory cytopenia with multilineage dysplasia, RCMD-RS refractory cytopenia with multilineage dysplasia and ringed sideroblasts, RAEB-1 refractory anaemia with excess blasts-1, 5q-syndrome