Table 2.
How HF patient and informal caregiver dyads mutually engage in self-care | ||
---|---|---|
Theme | Subthemes with variants | Dyad agrees/disagrees on self-care |
1) According to established patterns across the lifecourse of the relationship |
One (patient or caregiver) is more dominant (actor), one more passive (partner) |
Found in both dyads who agree or disagree |
Both members equal participants | Found in both dyads who agree or disagree |
|
Patient reports using past patterns /Caregiver corrects and reports new patterns |
Found only in dyads who disagree |
|
2) According to whether it’s day to day care (self- care maintenance) or symptom management (self-care management) |
Symptom crisis over-rides established pattern (dyad escalates) V.1 Caregiver steps up (dyad shifts from maintenance style) V.2 Dyad mobilizes outside help in crisis |
Found in both dyads who agree or disagree V.2 Found only in dyads who agree |
Established pattern over-rides crisis V.1 Patient remains in charge (dyad doesn’t shift from maintenance style) V.2 Dyad continues to collaborate but doesn’t escalate (dyad doesn’t shift from maintenance style) |
Found in both dyads who agree or disagree V.2 Found only in dyads who agree |
|
Context over-rides crisis | Found in dyad with paid caregiver |
|
3) By mobilizing the help of a third party/consultant |
Informal consultant – family member/friend |
Found in both dyads who agree or disagree |
Formal consultant- office nurse or physician |
Found in both dyads who agree or disagree |
Note. HF- heart failure, V. – variant