Table 2.

Data collection schedule

						Source
	Baseline	Follow-up visit
Location	ED	Phone	Phone	Home	Phone
Time since ED discharge	0	1 month	3 months	6 months	12 months
Informed assent, consent	X					Child, caregiver
Demographics
Gender, race/ethnicity, date of birth of child, caregiver's marital status, caregiver's highest level of education, caregiver's employment status, health insurance, household income	X					EHR, caregiver
Contact information, including alternates	X	X	X	X	X	Caregiver
Name and contact information of primary asthma provider	X	X	X	X	X	Caregiver
Preferred language at home	X					Caregiver
Medical history (child)
Height and weight	X					EHR
Comorbid conditions	X					EHR
Medications prescribed	X					EHR
Attendance at follow-up appointments		X				EHR
Self-management skills
Pharmacy dispensations for child		X	X	X	X	Pharmacy records
Inhaler technique	X			X		ED coordinator review
Outcomes
Primary outcomes (PROMIS Asthma Impact Scale; PROMIS Satisfaction with participation in social roles); and secondary outcomes	X	X	X	X	X	Child, caregiver, EHR
Estimated duration of each visit	60minutes	20 minutes	20 minutes	45 minutes	20 minutes

Data collection occurs on enrollment (in the ED), and then over a follow-up period of up to 12 months. Children enrolled in the first half of the 15-month recruitment periods complete follow-up assessments at 1 month (via phone), 3 months (via phone), and 6 months (home visit or via phone). Children enrolled early in the recruitment period are also invited to complete a follow-up visit at 12 months (via phone). Data may be collected from the Clinical center electronic health record (EHR), the caregiver, from the child, or from pharmacies. See 2.4 Outcomes, and 3.5 Data collection schedule for details. cACT=Childhood Asthma Control Test; ED= emergency department; EHR=Electronic health record; PACQLQ=Pediatric Asthma Caregiver Quality of Life; PROMIS= Patient-Reported Outcomes Measurement Information System.