Table 1.
Long-list of PMR PROM questionnaire items derived from the qualitative study
| Item | Question |
|---|---|
| 1 | How severe has the pain from your PMR been in the last 2 weeks? (0-10 visual analogue scale (VAS) with 0 = no pain and 10 = the worst pain you’ve ever had) |
| 2 | How severe has the stiffness from your PMR been in the last 2 weeks? (0-10 VAS with 0 = no stiffness and 10 = the worst stiffness you’ve ever felt) |
| 3 | How severe has the weakness from your PMR been in the last 2 weeks? (0-10 VAS with 0 = no weakness and 10 = complete weakness) |
| 4 | On average, for how much of each day has the pain/stiffness/weakness from your PMR been present for during the last 2 weeks? All day/About half the day/Around 1-3 hours/< 1 hour |
| 5 | FUNCTION: Over the last 2 weeks, compared to what you can normally do, has PMR limited your ability to do the following activities? Graded as 1) no, not limited at all, 2) yes, limited a little, 3) yes, limited a lot, 4) not relevant Bend down Get up after bending down Get in and out of a car Drive a car Get in and out of bed Get in or out of a chair Get in or out of a bath Wash yourself fully Dry yourself fully after a shower/bath Take your coat on or off Put on or take off your socks and shoes Comb or blow dry your hair Get on or off the toilet Wipe yourself after going to the toilet Engage in intimate/sexual activity Walk up stairs Walk up hills Walk on the flat Carry or lift things Reach above your head for things Grip objects Do housework Do gardening Sit for more than 30 minutes at a time Participate in sports |
| 6 | EMOTIONAL AND PSYCHOLOGICAL WELL-BEING: In the last 2 weeks have your PMR symptoms… Graded as 1) none of the time, 2) a little of the time, 3) some of the time, 4) most of the time, 5) all of the time Caused you to feel low in mood Caused you to feel anxious Caused you to feel vulnerable Lowered your self-confidence Made you worried that you might fall over Caused you to need more help with looking after yourself Made you less inclined to go out Stopped you doing hobbies that you used to do Made you worry about the future Affected your sleep Made you feel more tired than usual |
| 7 | TREATMENT SIDE EFFECTS: How much have you been affected by side effects from your medication in the last 2 weeks? (VAS with 0 = unaffected, 10 = severely affected) |
| 8 | In the last 2 weeks, have you been bothered by any of the following side effects of your steroid medication? (Yes/No) Weight gain Change in appearance (fatter face, saggy skin) Irritability Low mood Euphoria Hyperactivity Easy bruising Indigestion Insomnia Hair loss |
| 9 | Do you feel back to the level of health you were at before you first experienced PMR symptoms? (Yes/No) |