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Number of living NCL patients currently registered with the Batten Disease Support and Research Association (BDSRA).
| Patients in the US | Average survival | Patients born per year | Minimum carrier frequency (1 per n individuals) | |
|---|---|---|---|---|
| PPT1 | 20 | 10 | 2 | 1/707 |
| TPP1 | 68 | 10 | 6.8 | 1/383 |
| CLN3 | 115 | 25 | 4.6 | 1/466 |
| CLN5 | 7 | 10 | 0.7 | 1/1195 |
| CLN6 | 10 | 10 | 1 | 1/1000 |
| MFSD8 | 4 | 10 | 0.4 | 1/1581 |
| CLN8 | 1 | 10 | 0.1 | 1/3162 |
