Table 1.

Characteristics of 241 screened SDHB mutation carriers

	Total	Male	Female	P
Screened SDHB mutation carriers (N, %)	241 (100%)	111 (46.06%)	130 (53.94%)	0.25
Age of initial screening*	38 (2 – 85)	40 (2 – 85)	37.5 (3 – 83)	0.80
Years of screening/follow-up at NIH*	1 (0-14)	2 (0 – 11)	1 (0 – 14)	0.11
Number of screenings/follow-ups*	2 (1-26)	2 (1 – 26)	2 (1 – 10)	0.11
Other tumors (N, %)	27 (11.20%)	15 (13.51%)	12 (9.23%)	0.20
PHEO/PGL diagnosis	40 (16.60%)	27 (24.32%)	13 (10.00%)	0.003
Age at initial diagnosis*	36.5 (11 – 74)	34 (11 – 74)	44 (13 – 64)	0.56
Diagnosed at initial screening (N, %)	23 (57.50%)	18 (66.67%)	5 (38.46%)	0.17
Diagnosed prior coming to NIH	14 (35%)	8 (29.63%)	6 (46.15%)	0.48

^*years, median (range)