TABLE 1.
Survey Respondents Recruited From Registry (N = 452) |
Subset Eligible for Interview (N = 204) |
All Interviewees (N = 30) |
Adherent Interviewees (N = 17) |
Nonadherent Interviewees (N = 13) |
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Variable | n | % | n | % | n | n | n | pa |
Sociodemographics | ||||||||
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Age (years) | 0.203 | |||||||
49 or younger | 63 | 14 | 27 | 13 | 1 | 1 | – | |
50–64 | 228 | 50 | 118 | 58 | 18 | 9 | 9 | |
65 and older | 161 | 36 | 59 | 29 | 11 | 7 | 4 | |
Race or ethnicity | 0.181 | |||||||
Non-Hispanic White | 336 | 74 | 160 | 78 | 27 | 15 | 12 | |
Non-Hispanic Black | 65 | 14 | 22 | 11 | 1 | – | 1 | |
Hispanic | 37 | 8 | 15 | 7 | 2 | 2 | – | |
Other or unknown | 14 | 3 | 7 | 3 | – | – | – | |
Marital statusb | 0.453 | |||||||
Married or partnered | 300 | 66 | 148 | 73 | 22 | 14 | 8 | |
Other | 147 | 33 | 55 | 27 | 8 | 3 | 5 | |
Missing data | 5 | 1 | 1 | 1 | – | – | – | |
Educationb | 0.096 | |||||||
High school diploma | 78 | 17 | 23 | 11 | 4 | 2 | 2 | |
Some college or technical school | 140 | 31 | 58 | 28 | 5 | 3 | 2 | |
Bachelor’s degree | 138 | 31 | 71 | 35 | 15 | 9 | 6 | |
Graduate degree | 92 | 20 | 52 | 25 | 6 | 3 | 3 | |
Missing data | 4 | 1 | – | – | – | – | – | |
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Medical history | ||||||||
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Tumor stagec | 0.174 | |||||||
0 | 81 | 18 | 25 | 12 | 5 | 4 | 1 | |
I | 137 | 30 | 63 | 31 | 13 | 5 | 8 | |
II | 114 | 25 | 58 | 28 | 3 | 3 | – | |
III | 33 | 7 | 17 | 8 | 2 | 2 | – | |
Missing data | 87 | 19 | 41 | 20 | 7 | 3 | 4 | |
Years since diagnosis | 0.616 | |||||||
Fewer than five | 313 | 69 | 140 | 69 | 22 | 13 | 8 | |
Five or more | 139 | 31 | 64 | 31 | 8 | 4 | 5 | |
Doctor recommendation for taking AET | – | |||||||
Yes | 279 | 62 | 204 | 100 | 30 | 17 | 13 | |
No | 159 | 35 | – | – | – | – | – | |
Missing data | 14 | 3 | – | – | – | – | – | |
AET at initiation (self-report)d | – | |||||||
Tamoxifen or raloxifene | – | – | – | – | 10 | – | – | |
Aromatase inhibitors | – | – | – | – | 20 | – | – | |
Switched medication | – | |||||||
Yes | – | – | – | – | 8 | – | – | |
No | – | – | – | – | 22 | – | – | |
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Access and use | ||||||||
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Received care in 2010–2011 | – | |||||||
Yes | 403 | 89 | 21 | 10 | 27 | 14 | 13 | |
No | 49 | 11 | 183 | 90 | 3 | 3 | – | |
Provider seenb | 0.812 | |||||||
None | 48 | 11 | 21 | 10 | 3 | 2 | 1 | |
PCP | 12 | 3 | 4 | 2 | – | – | – | |
Oncologist | 313 | 69 | 148 | 73 | 22 | 11 | 11 | |
PCP and oncologist | 79 | 17 | 31 | 15 | 5 | 4 | 1 | |
Overall healthb | 0.801 | |||||||
Excellent | 61 | 13 | 31 | 15 | 5 | 3 | 3 | |
Very good | 167 | 37 | 75 | 37 | 12 | 7 | 2 | |
Good | 159 | 35 | 74 | 36 | 8 | 5 | 7 | |
Fair or poor | 57 | 13 | 21 | 10 | 4 | 1 | 2 | |
Missing data | 8 | 2 | 3 | 1 | 1 | 1 | – | |
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Cancer concernse | ||||||||
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Cancer worry | – | |||||||
High | 243 | 54 | 107 | 52 | 17 | 8 | 9 | |
Low | 201 | 44 | 94 | 46 | 12 | 8 | 4 | |
Missing data | 8 | 3 | 3 | 1 | 1 | 1 | – | |
Outcome expectations | – | |||||||
High | 82 | 18 | 28 | 14 | 3 | 1 | 2 | |
Low | 358 | 79 | 173 | 85 | 26 | 15 | 11 | |
Missing data | 12 | 3 | 3 | 1 | 1 | 1 | – |
The p value reflects comparisons between survey respondents and interview participants on variables of interest.
These variables were assessed in the survey only.
Tumor stage was only collected consistently in registry data beginning in 2006.
These data were not available in the registry and were obtained by self-report in interviews.
Participants reported cancer concerns in the survey using a five-point Likert-type scale from 1 (strongly disagree) to 5 (strongly agree). Responses for cancer worry and outcome expectations were subsequently dichotomized (high = greater than 3, low = 3 or less).
AET—adjuvant endocrine therapy; PCP—primary care provider
Note. Because of rounding, percentages may not total 100.