Table 1.

Administration schedule for standardized psychosocial assessment.

Measure	Assesses	Focus	Informant	Administration Schedule
				Patient Age (yrs)	Initial	Follow-Up
Psychosocial Assessment Toola	Psychosocial risk factors: Family Structure & Resources; Family Social Support; Family Problems; Parent Stress Reactions; Family Beliefs; Child Problems; Sibling Problems	Family	Parent	All	First visit	Annual
Support and Resource Assessmentb	Degree to which social support systems and educational resources are accessed	Parent	Parent	All	First visit	Annual
Patient Health Questionnaire-4c	Depression and anxiety screen	Parent	Parent	All	First visit	Annual
Knowledge of Conditiond
Caregiver Report	Knowledge of diagnosis and understanding of cause; parental impression of child’s understanding	Parent Patient	Parent	All	≥6 mos after first visit	Annual
Self-Report		Patient	Patient	≥10
Child Behavior Checkliste	Competencies: Activities, Social, School; Behavior problems: Internalizing, Externalizing, Total	Patient	Parent	1.5 – 18	First visit	Annual
Self-Perception Profilef	Global self-worth; Domain-specific self-concept (eg, social & job competence)	Patient	Patient	8 – 18	First visit	2 years
Body Image Scaleg	Satisfaction with primary- and secondary- sex-related characteristics and hormonally unresponsive body features	Patient	Patient	Girls ≥10 Boys ≥12	≥6 mos after first visit	2 years
Multidimensional Gender Identity Scaleh	Gender typicality; experience of gender identity discontent; pressure to conform to gender stereotypes	Patient	Patient	8 – 18	≥6 mos after first visit	2 years
Youth Self-Reporte	Competencies: Activities, Social, School; Behavior problems: Internalizing, Externalizing, Total	Patient	Patient	11 – 18	First visit	Annual

^aPAT [Kazak et al., 2015; Pai et al., 2008]

^bSRA [Sandberg and Gardner 2011c]

^cPHQ-4 [Kroenke et al., 2009]

^dKOC-CR & KOC-SR[Sandberg and Gardner 2011a; Sandberg and Gardner 2011b]

^eCBCL & YSR [Achenbach 2009]

^fSPP [Harter 1985; Harter 1988]

^gBIS, adapted from [Lindgren and Pauly 1975]

^hMGIS [Egan and Perry 2001]