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. Author manuscript; available in PMC: 2018 Jun 2.
Published in final edited form as: Am J Med Genet C Semin Med Genet. 2017 Jun 2;175(2):279–292. doi: 10.1002/ajmg.c.31561

Table 4.

Parental support and resources: Support and Resources Assessment (SRA).

Endorsed item
N* n %
I have not & will not tell _____ about my child’s condition:
My coworkers 76 38 50.0
My child’s daycare provider 29 13 44.8
My other relatives 93 25 26.9
My close friends 92 18 19.6
My other children 80 12 15.0
My spouse/partner’s parents 82 7 8.5
My parents 94 5 5.3
My spouse/partner 97 0 0

I have not & will not seek out additional information and support by:
Talking to my friends 98 53 54.1
Talking with adults who have a urogenital condition 95 38 40.0
Talking with other parents of children who have a similar condition 95 23 24.2
Going to a library or read printed material 99 22 22.2
Talking to my family 98 20 20.4
Visiting a support, resource, or advocacy organization’s website 95 13 13.7
Talking to my child’s doctors 101 0 0
*

the N for responses to selected items varies due to applicability (e.g., family does not use daycare services) or missing data