Table 1.
Health status subdomains and their definition and included instruments of the Nijmegen Clinical Screening Instrument (NCSI)
Domain | Subdomain | Definition | Instruments/measurement | No. of items |
---|---|---|---|---|
Physiological functioning | Airflow | Post-bronchodilator FEV1% of predicted | ||
Body composition | Body mass index | |||
Exercise capacity | VO2 max% of predicted | |||
Symptoms | Subjective symptoms | The patient’s overall burden of pulmonary symptoms | PARS-D Global Dyspnoea Activity [11] | 1 |
PARS-D Global Dyspnoea Burden [11] | 1 | |||
Dyspnoea emotions | The level of frustration and anxiety a person experiences when dyspnoeic | DEQ frustration [11] | 3 | |
DEQ anxiety [11] | ||||
Fatigue | The level of experienced fatigue | CIS subjective fatigue [20] | 8 | |
Functional impairment | Subjective impairment | The experienced degree of impairment in general | QoLRiQ general activities [21] | 4 |
Behavioural impairment | The extent to which a person cannot perform specific and concrete activities as a result of having the disease | SIP home management [22] | 10 | |
SIP ambulation [22] | 12 | |||
Quality of life | General quality of life | Mood and the satisfaction of a person with his/her life as a whole | BDI primary care [23] | 7 |
Satisfaction with life scale [24] | 5 | |||
Health-related quality of life | Satisfaction related to physical functioning and the future | Satisfaction physiological functioning [11] | 1 | |
Satisfaction future [11] | 1 | |||
Satisfaction relations | Satisfaction with the (absent) relationships with spouse and others | Satisfaction spouse [11] | 1 | |
Satisfaction social [11] | 1 |
No. number, FEV 1 forced expiratory volume in 1 s, VO 2 max maximal oxygen uptake, PARS-D Physical Activity Rating Scale-Dyspnoea, DEQ Dyspnoea Emotions Questionnaire, CIS Checklist Individual Strength, QoL-RiQ Quality of Life for Respiratory Illness Questionnaire, SIP Sickness Impact Profile, BDI Beck’s Depression Inventory