Table 4.
Experience of preparation for transition among adolescents living with HIV with a low and high level of preparedness for transition to adult care
| Experiences in preparation process for transition | Total (n = 223) | Level of preparedness for transitiona | ||
|---|---|---|---|---|
| Low (≤7) (n = 104) | High (>7) (n = 119) | p value† | ||
| n (%) | n (%) | n (%) | ||
| Facility you prefer to receive HIV treatment and care | 0.08 | |||
| Pediatric ART services | 187 (83.9) | 92 (88.5) | 95 (79.8) | |
| Adult ART services | 36 (16.1) | 12 (11.5) | 24 (20.2) | |
| Preferred to discuss questions related to health, sexual life, or daily life with | 0.78 | |||
| Health care providers | 50 (22.4) | 21 (20.2) | 29 (24.4) | |
| Counselors/peer educators | 9 (4.0) | 5 (4.8) | 4 (3.4) | |
| Friends | 37 (16.6) | 20 (19.2) | 17 (14.3) | |
| Family | 101 (45.3) | 45 (43.3) | 56 (47.1) | |
| Other | 26 (11.7) | 13 (12.5) | 13 (10.9) | |
| Person who you trust the most for your treatment | 0.001 | |||
| Health care providers | 176 (78.9) | 92 (88.5) | 84 (70.6) | |
| Counselors/peer educators | 10 (4.5) | 5 (4.8) | 5 (4.2) | |
| Friends/family | 27 (12.1) | 3 (2.9) | 24 (20.2) | |
| Other | 10 (4.5) | 4 (3.8) | 6 (5.0) | |
| Sources of information about health | 0.90 | |||
| ART clinic | 134 (60.1) | 61 (58.7) | 73 (61.3) | |
| NGOs | 17 (7.6) | 8 (7.7) | 9 (7.6) | |
| Family | 51 (22.9) | 26 (25.0) | 25 (21.0) | |
| Other | 21 (9.4) | 9 (8.7) | 12 (10.1) | |
| Received counseling on transition to adult services | 0.01 | |||
| No | 157 (70.4) | 82 (78.8) | 75 (63.0) | |
| Yes | 66 (29.6) | 22 (21.2) | 44 (37.0) | |
| Person who provided the counseling | 0.43 | |||
| Health providers | 24 (36.9) | 7 (33.3) | 17 (38.6) | |
| Counselors/peer educators | 31 (47.7) | 9 (42.9) | 22 (50.0) | |
| Other | 10 (15.4) | 5 (23.8) | 5 (11.4) | |
| Ever completed a transfer form | 0.14 | |||
| No | 217 (97.3) | 103 (99.0) | 114 (95.8) | |
| Yes | 6 (2.7) | 1 (1.0) | 5 (4.2) | |
| Ever visited an adult clinic to prepare for transition | 0.03 | |||
| No | 179 (80.3) | 90 (86.5) | 89 (74.8) | |
| Yes | 44 (19.7) | 14 (13.5) | 30 (25.2) | |
| Person who took you to visit the adult clinic to prepare for transition | 0.15 | |||
| Counselors/peer educators | 2 (4.7) | 1 (7.7) | 1 (3.4) | |
| Friends/family | 30 (69.8) | 11 (84.6) | 19 (63.3) | |
| Other | 11 (25.5) | 1 (7.7) | 10 (33.3) | |
| The visit was helpful for you to cope with the transition | 0.61 | |||
| No | 5 (11.6) | 2 (15.4) | 3 (10.0) | |
| Yes | 38 (88.4) | 11 (84.6) | 27 (90.0) | |
| A ‘Case Manager’ has been identified to support you during the transition | <0.001 | |||
| No | 168 (75.3) | 91 (87.5) | 77 (64.7) | |
| Yes | 55 (24.7) | 13 (12.5) | 42 (35.3) | |
| Preparedness to manage your treatment going forward | 0.01 | |||
| Very prepared | 29 (13.0) | 8 (7.7) | 21 (17.6) | |
| Somewhat prepared | 168 (75.3) | 81 (77.9) | 87 (73.1) | |
| Somewhat unprepared | 12 (5.4) | 4 (3.8) | 8 (6.7) | |
| Very unprepared | 14 (6.3) | 11 (10.6) | 3 (2.5) | |
| Feeling supported during preparation process for the transition to adult care | 0.96 | |||
| Very supported | 11 (14.9) | 2 (11.8) | 9 (15.8) | |
| Somewhat supported | 44 (59.5) | 10 (58.8) | 34 (59.6) | |
| Somewhat unsupported | 7 (9.4) | 2 (11.8) | 5 (8.8) | |
| Very unsupported | 12 (16.2) | 3 (17.6) | 9 (15.8) | |
| Satisfaction you with the preparation process for transition in general | <0.001 | |||
| Very satisfied | 16 (7.2) | 2 (1.9) | 14 (11.8) | |
| Somewhat satisfied | 51 (22.9) | 15 (14.4) | 36 (30.3) | |
| Somewhat dissatisfied | 26 (11.7) | 11 (10.6) | 15 (12.6) | |
| Very dissatisfied | 130 (58.3) | 76 (73.1) | 54 (45.4) | |
ART antiretroviral therapy, HIV human immunodeficiency virus
†Chi square or Fisher’s exact test was used as appropriate
aMean score of preparedness for transition scale was used to divide participants into two groups—adolescents with low level of readiness (≤7) and adolescents with high level of readiness (>7)