Table 2. Scores for functional visual ability (FVA), vision- and health-related quality of life (VR-QoL, HR-QoL) reported by parents/carers and children.
| Age 2–4 years | Age 5–7 years | Age 8–12 years | Age 13–16 years | All age groups | |
|---|---|---|---|---|---|
| CVAQC | |||||
| Median (IQR) | −0.36 (−1.94 to 0.37) | −1.42 (−2.37 to 0.06) | −1.91 (−2.30 to−1.36) | −1.42 (−2.28 to −0.03) | |
| IVI-C | |||||
| Mean (SD) | 63.82 (17.96) | 73.5 (9.26) | 65.67 (16.91) | ||
| PedsQL family report | |||||
| Median (IQR) | 65.28 (51.39 to 76.47) | 78.17 (63.89 to 86.28) | 78.13 (57.09 to 92.01) | 61.79 (50.87 to 87.41) | 75 (56.94 to 88.19) |
| PedsQL parent report | |||||
| Median (IQR) | 72.12 (55.95 to 87.5) | 65.22 (49.46 to 82.88) | 80.43 (59.27 to 95.11) | 61.41 (55.16 to 78.80) | 71.74 (51.98 to 88.5) |
| PedsQL self-report | |||||
| Median (IQR) | 66.30 (57.07 to 73.91) | 81.52 (65.76 to 96.2) | 80.98 (68.75 to 91.85) | 76.09 (61.96 to 89.13) | |
| PedsQL family report physical subscore | |||||
| Median (IQR) | 66.67 (50 to 100) | 79.17 (61.46 to 100) | 90.00 (68.75 to 100) | 58.33 (48.96 to 81.25) | 79.17 (58.33 to 100) |
| PedsQL family report psychosocial subscore | |||||
| Median (IQR) | 65.83 (51.67 to 79.46) | 77.08 (64.79 to 83.75) | 78.33 (54.17 to 90.26) | 65.06 (51.88 to 85.63) | 73.33 (54.79 to 85.63) |
| PedsQL parent report physical subscore | |||||
| Median (IQR) | 79.69 (53.13 to 89.84) | 73.44 (51.56 to 94.53) | 87.50 (61.61 to 93.75) | 59.38 (49.22 to 95.31) | 81.25 (50 to 93.75) |
| PedsQL parent report psychosocial subscore | |||||
| Median (IQR) | 67.31 (54.33 to 86.54) | 62.50 (52.08 to 75.42) | 73.33 (51.55 to 90.83) | 64.17 (52.92 to 72.5) | 68.33 (53.33 to 85.71) |
| PedsQL self-report physical subscore | |||||
| Median (IQR) | 71.88 (56.25 to 85.94) | 84.38 (66.41 to 99.22) | 87.50 (67.97 to 95.31) | 82.81 (64.84 to 94.53) | |
| PedsQL self-report psychosocial subscore | |||||
| Median (IQR) | 61.67 (53.33 to 72.50) | 79.17 (62.50 to 91.67) | 79.17 (70 to 91.67) | 73.33 (60 to 85.95) | |
Possible CVAQC scores (FVA) extend from −3.00 (normal visual ability) to +2.80 (severe visual impairment). Possibe IVI-C scores are between 0 and 96 (96=normal VR-QoL); participants in this study reported markedly reduced VR-QoL. Possible PedsQL scores range from 0 to 100 (100=normal HR-QoL); in this study, scores were severely reduced in all versions and subscales of the instrument (parent report, family report, self-report, physical and psychosocial subscores).