Table 1.
Analysis grid (MAXQDA codebook)
| Categories and subcategories |
|---|
| Representations about the disease and associated elements |
| Communication with the rheumatologist/other doctors |
| Personal feelings and/or expectations |
| Coping strategies |
| Concerns shown |
| Knowledge about the disease |
| Sources of information about the disease |
| Personal views on the treatments |
| Adverse events attributed to treatments |
| Beliefs about treatments |
| Current or past treatments |
| Reasons for adherence |
| Wish to avoid manifestations of the disease |
| Routine |
| Trust in the benefits of the treatment |
| Trust in the rheumatologist/other doctors |
| Fear of symptom flare-ups |
| Other reasons for adherence |
| Reasons for nonadherence |
| Neglect |
| Adverse reaction to the medication |
| Belief that the disease can be better treated using alternate methods |
| Belief that the medications available are not effective |
| Negation of the disease |
| Devaluation of the disease |
| Other reasons for nonadherence |
| Complementary information |
| Health services – suggestions for improvement |
| Adherence to medical visits |
| Adherence to laboratory, imaging, and other testing |
| Reported evolution of the disease |
| Other complementary information |
| Reported crisis |
| First symptoms and diagnosis |
| Implications of the disease |
| Being discriminated against |
| Appearance/esthetic aspects |
| Family planning/limitation of family size |
| Functional impairment |
| Hospital admissions |
| Impairment of professional activities |
| Impairment of recreational activities |
| Limitation in assistance to the family |
| Limitation in domestic activities |
| Other implications |
| Pain |
| Requiring assistance for activities of daily life |
| Reactions to the implications of the disease |
| Acceptation |
| Anger |
| Creating distractions/to occupy the mind with something else |
| Fear |
| Guiltiness |
| Isolation/impairment in social interaction |
| Other reactions |
| Powerlessness |
| Sadness |