Table 3.
Summary of Social Support both Received and Not-Received and the Role of Social Network to Provide Support Across the Treatment Timeline
| Received/Not-Received | Treatment Timeline | Support | Network | |
|---|---|---|---|---|
| Members | Roles | |||
| Received | ||||
|
| ||||
| Throughout | Instrumental, Emotional | Partners, Friends, Family, Support Groups | Friends and partners attended doctor’s appointments; emotional support throughout | |
|
| ||||
| Before Treatment | Instrumental, Emotional, Informational, Appraisal | Partners, Friends, Family, Support Groups | Partners played varied roles in terms of appraisal support for treatment decision making; Support Groups offered informational/appraisal support to inform decision-making | |
|
| ||||
| During Treatment | Instrumental | Partners (if available), Friends, Family, Paid Caregivers | Family members (parents/siblings) helped around surgery; day or two after surgery; Partners played varied role by treatment type (less intensive for radiation than surgery) | |
|
| ||||
| After Treatment | Informational, Emotional | Partners, Friends, Support Groups | Offering informational and emotional support for treatment side effects | |
| Wanted/Unmet Support or Done by self | ||||
|
| ||||
| Throughout | Informational/Emotional/Appraisal | GBMPCa Support Groups | ||
|
| ||||
| Before Treatment | ||||
|
| ||||
| During Treatment | Instrumental Support - Caregiving post-surgery | Done Alone | Not wanting to ask for instrumental support from friends because of catheter | |
|
| ||||
| After Treatment | Informational, Emotional | Partners, Friends, Support Groups | Some noted being very selective about who could provide support about treatment side-effects | |