Table 3.

Death Outcomes Following CCP Participation by Early and Late Referral to the Multidisciplinary CKD Clinic.^a

Death outcome	Deceased patients (n = 103, 67% of all patients)	Late referral (n = 36/103, 35% of deceased patients)	Early referral (n = 67/103, 65% of deceased patients)
Advanced care planning initiated before program exit, n (%)b	82 (88.2)	30 (93.8)	52 (85.2)
Known preferred place of death, n (%)	82 (79.6)	31 (86.1)	51 (76.1)
Match between preferred and actual place of death, %c	81.7	83.9	80.4
Death in hospital, n (%)d	27 (26.7)	9 (25.0)	18 (27.7)
Dialysis Quality of Dying Apgar, mean (SD)	8.9 (1.0)	9.0 (1.0)	9.0 (1.1)
Death due to uremia, n (%)e	52 (63.4)	19 (61.3)	33 (64.7)
Bereavement follow-up for family members, n (%)f	70 (71.4)	27 (79.4)	43 (67.2)

Note. CCP = conservative care program; CKD = chronic kidney disease.

^aEarly referral: at >90 days before onset of G5 non-dialysis CKD. Late referral: after onset of or at ≤90 days before onset of G5 non-dialysis CKD.

^bDue to missing data, the proportions for advanced care planning initiation are with respect to the following sample sizes: deceased patients (n = 93), late referral (n = 32), and early referral (n = 61).

^cWhen both actual and preferred places of death were known.

^dDue to missing data, the proportions for death in hospital are with respect to the following sample sizes: deceased patients (n = 101), late referral (n = 36), and early referral (n = 65).

^eDue to missing data, the proportions for death due to uremia are with respect to the following sample sizes: deceased patients (n = 82), late referral (n = 31), and early referral (n = 51).

^fDue to missing data, the proportions for bereavement follow-up are with respect to the following sample sizes: deceased patients (n = 98), late referral (n = 34), and early referral (n = 64).