Table 1.
General characteristics
General Characteristics of Phase I and II Participants
| Phase I n=2604 |
Phase II n=381 |
p value | |
|---|---|---|---|
| General Demographics | |||
| Mean Age (SD) [range] years | 14.6 (8.4) [5–73] | 15.0 (8.4) [5–57] | NS |
| Female n (%) | 1373 (52.7%) | 188 (49.3%) | NS |
| Race n (%) | |||
| White/Caucasian | 2198 (84.4%) | 319 (83.7%) | NS |
| Black/African American | 231 (8.9%) | 44 (11.5%) | |
| Asian | 80 (3.1%) | 9 (2.4%) | |
| American Indian/Alaska Native | 11 (0.4%) | 0 (0%) | |
| Native Hawaiian/Pacific Islander | 8 (0.3%) | 0 (0%) | |
| Refused to provide | 4 (0.2%) | 0 (0%) | |
| Missing | 25 (1.0%) | 0 (0%) | |
| Other/more than one race | 47 (1.8%) | 9 (2.4%) | |
| Ethnicity n (%) | |||
| Hispanic or Latino | 536 (20.6%) | 66 (17.3%) | NS |
| Not Hispanic or Latino | 2057 (79.0%) | 315 (82.7%) | |
| Did not provide | 11 (0.4%) | 0 (0%) | |
| Subtypes and shunting n (%) | |||
| missing subtype | 1 (0.0%) | 1 (0.3%) | NS |
| myelomeningocele | 2156 (82.8%) | 323 (84.8%) | |
| non-myelomeningocele | 447 (17.2%) | 57 (15.0%) | |
| >lipomyelomeningocele | 349 (13.4%) | 45 (11.8%) | |
| >meningocele | 43(1.7%) | 7 (1.8%) | |
| >fatty filum/tethered cord | 55 (2.1%) | 5 (1.3%) | |
| Shunting | |||
| myelomeningocele and shunted | 1723 (79.9%) | 279 (86.4%) | p=0.002 |
| non-myelomeningocele and shunted | 20 (4.5%) | 4 (7.0%) | NS |
SD=standard deviation, NS=not statistically significant