Table 1.
Demographic and clinical data.
| Characteristic | Response rate (%) | Totals | |
| Gender, n (%) | 47.7 | ||
| Female | 43 (69.4) | ||
| Male | 19 (30.6) | ||
| Age, n (%) | 48.5 | ||
| <20 years | 1 (1.6) | ||
| 20-39 years | 28 (44.4) | ||
| 40-54 years | 22 (34.9) | ||
| 55-59 years | 9 (14.3) | ||
| >60 years | 3 (4.8) | ||
| Education, n (%) | 49.2 | ||
| 8 years | 9 (14.1) | ||
| 13 years (high school) | 24 (37.5) | ||
| 3-year degree | 10 (15.6) | ||
| Master’s degree | 15 (23.4) | ||
| PhD | 3 (4.7) | ||
| Other | 3 (4.7) | ||
| Disease duration, years, mean (SD) | 90.0 | 7.7 (7.5) | |
| Treatment/therapy duration, years, mean (SD) | 86.9 | 6.7 (6.9) | |
| Frequency of SMsocialnetwork.com access, n (%) | 95.4 | ||
| ≤1 time per month | 43 (34.7) | ||
| 1 time per week | 18 (14.5) | ||
| >1 time per week | 40 (32.3) | ||
| Daily | 16 (12.9) | ||
| >1 time per day | 7 (5.7) | ||
| Frequency of SMsocialnetwork.com access compared to total Internet access, n (%) | 93.8 | ||
| All the time | 15 (12.3) | ||
| >1 time | 33 (27.1) | ||
| Sometimes | 32 (26.2) | ||
| Few times | 19 (15.6) | ||
| Rarely | 23 (18.9) | ||
| Self-reported health status, n (%) | 96.2 | ||
| Excellent | 10 (8.0) | ||
| Good | 35 (28.0) | ||
| Average | 44 (35.2) | ||
| Not very good | 29 (23.2) | ||
| I prefer not to answer | 5 (4.0) | ||
| Other | 2 (1.6) | ||