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. Author manuscript; available in PMC: 2018 Jul 1.
Published in final edited form as: Epilepsy Behav. 2017 Jun 7;72:114–121. doi: 10.1016/j.yebeh.2017.04.009

Table 1. Demographic and disease characteristics by study.

Focus Group (N=5) Usability Testing Group (N=6)
Child Age (years; M(SD)) 14.3 (1.29) 15.9 (1.29)
Time since diagnosis (years; M(SD)) 3.6 (2.5) 2.6 (2.5)
Sex:
 Male 40% 83%
 Female 60% 17%
Child race
 White: Non-Hispanic 100% 66.6%
 White: Hispanic 0% 16.7%
 African American 0% 16.7%
Family Duncan Score* (M(SD)) 69.3 (14.0) 67.9 (15.1)
Participating Caregiver
 Mother 83% 83%
 Father 17% 17%
Caregiver Marital Status
 Married 100% 83%
 Divorced 0% 17%
Seizure Type and Etiology
 Idiopathic Generalized 40% 16.7%
 Idiopathic Localization-related 20% 33.3%
 Idiopathic Unclassified 20% 33.3%
 Symptomatic Localization-related 20% 16.7%
Seizures present in the past year 60% 33.3%
Antiepileptic Drug Prescribed
 Carbamazepine 20% 16.7%
 Levetiracetam 40% 66.7%
 Oxcarbazepine 20% 16.7%
 Valproate 20% 0%
% with clinically elevated BRIEF Scores (Parent/Adolescent)
 Inhibition 40%/20% 0%/33%
 Shift 20%/40% 17%/17%
 Emotional Control 20%/40% 17%/17%
 Initiation/Task Completion 40%/40% 0%/17%
 Working Memory 20%/40% 0%/17%
 Planning/Organization 20%/40% 0%/17%
 Planning Organization of Materials 40%/20% 0%/17%
 Monitor 20%/20% 0%/0%
*

Family Duncan score reflects the following types of occupations: 69.3-social worker, public administration; 67.9-financial officers, technician