Table 1. Demographic and disease characteristics by study.
Focus Group (N=5) | Usability Testing Group (N=6) | |
---|---|---|
Child Age (years; M(SD)) | 14.3 (1.29) | 15.9 (1.29) |
Time since diagnosis (years; M(SD)) | 3.6 (2.5) | 2.6 (2.5) |
Sex: | ||
Male | 40% | 83% |
Female | 60% | 17% |
Child race | ||
White: Non-Hispanic | 100% | 66.6% |
White: Hispanic | 0% | 16.7% |
African American | 0% | 16.7% |
Family Duncan Score* (M(SD)) | 69.3 (14.0) | 67.9 (15.1) |
Participating Caregiver | ||
Mother | 83% | 83% |
Father | 17% | 17% |
Caregiver Marital Status | ||
Married | 100% | 83% |
Divorced | 0% | 17% |
Seizure Type and Etiology | ||
Idiopathic Generalized | 40% | 16.7% |
Idiopathic Localization-related | 20% | 33.3% |
Idiopathic Unclassified | 20% | 33.3% |
Symptomatic Localization-related | 20% | 16.7% |
Seizures present in the past year | 60% | 33.3% |
Antiepileptic Drug Prescribed | ||
Carbamazepine | 20% | 16.7% |
Levetiracetam | 40% | 66.7% |
Oxcarbazepine | 20% | 16.7% |
Valproate | 20% | 0% |
% with clinically elevated BRIEF Scores (Parent/Adolescent) | ||
Inhibition | 40%/20% | 0%/33% |
Shift | 20%/40% | 17%/17% |
Emotional Control | 20%/40% | 17%/17% |
Initiation/Task Completion | 40%/40% | 0%/17% |
Working Memory | 20%/40% | 0%/17% |
Planning/Organization | 20%/40% | 0%/17% |
Planning Organization of Materials | 40%/20% | 0%/17% |
Monitor | 20%/20% | 0%/0% |
Family Duncan score reflects the following types of occupations: 69.3-social worker, public administration; 67.9-financial officers, technician