Abstract
Objective
To gain a better understanding as to whether disparities in patient-provider relationships arise from ethnic minority patients being treated differently than European American patients while they would prefer to be treated the same, or whether disparities arise when ethnic minority patients are treated the same as European American patients while they would prefer to be treated differently.
Method
African American, Latina/Latino, and European American community members were recruited to participate in one of 27 focus group discussions. Topics included what made a good or bad relationship with a doctor and what led one to trust a doctor. A thematic analysis was conducted using NVivo 10.
Results
Patients of all groups described experiences that reflected the concepts of patient-centered care, such as wanting a clinician who is attentive to patients’ needs. African American patients reported experiences they viewed as discriminatory. Some African American patients felt it was appropriate to racially/ethnically contextualize their care, and most Latina/Latino patients preferred language/culturally concordant clinicians.
Conclusion
Healthcare disparities might be reduced through a patient-centered approach to cultural competency training, general knowledge of the cultural context of clinicians’ patient population, and attention to the effects of racial bias and discrimination among both clinicians and non-clinical staff.
Keywords: clinician-patient relationships, patient-centered care, cultural competency, healthcare disparities, ethnic minorities, focus groups
Introduction
Despite efforts through community interventions and healthcare training programs, healthcare disparities persist for African Americans and Latinas/Latinos (National Center for Health Statistics, 2016; Shi et al., 2013; Smedley, Stith, & Nelson, 2003). Although these disparities have many sources, they result at least in part from patients’ experiences in clinician-patient relationships. For example, in comparison to European American patients, African American patients see themselves as being in worse health and receiving lower quality of care (Smedley et al., 2003). They are more likely to visit the emergency department and they have fewer physician visits per year (Brown et al., 2012; Smedley et al., 2003). In the clinician’s office, for example, physicians are more verbally dominant and engage in less patient-centered communication with African American patients than with White patients (Johnson, Roter, Powe, & Cooper, 2004). Along with African Americans, Latinas/Latinos report greater perceived discrimination compared to European Americans and these perceptions are associated with lower ratings of quality of care (Sorkin, Ngo-Metzger, & Alba, 2010). These perceptions may be amplified when Latinas/Latinos face language barriers. For example, limited English proficient (LEP) Latinas/Latinos with language-discordant physicians are more likely to have poor glycemic control than LEP Latinas/Latinos with language-concordant physicians (Fernandez et al., 2010). This finding suggests that language concordance is an important component to trust-building, medication comprehension, and overall receipt of quality of care for LEP Latinas/Latinos (Diamond & Jacobs, 2010).
There is debate over the principal underlying sources of these disparities in clinician-patient relationships. Lower quality clinician-patient relationships for minority patients may arise from clinicians treating patients differently based on race/ethnicity. Clinicians may deliver higher quality, more patient-centered care to White patients due to cultural insensitivity, racial bias, or discriminatory treatment (Betancourt & Green, 2010; Blair et al., 2013; Cooper et al., 2012; Penner et al., 2013). Alternatively, lower quality clinician-patient relationships for minority patients may arise from racial or ethnic differences between clinicians’ and patients’ preferences, beliefs, and values. Clinicians may deliver the same care to White and minority patients with the result that minority patients perceive lower quality care due to a lack of cultural tailoring (Betancourt & Green, 2010; Saha, Beach, & Cooper, 2008; Weech-Maldonado et al., 2012).
Cultural competency training has been adopted as health professionals’ primary approach to addressing racial and ethnic disparities in healthcare, but currently such training varies widely. In the US some programs focus on reducing provider bias and equalizing the care provided to patients of varied ethnic groups, while other programs focus on improving provider awareness and responsiveness to varying cultural norms and differentiating care for patients of color versus European American patients (Betancourt & Green, 2010; Blair, Steiner, & Havranek, 2011; Lie, Lee-Rey, Gomez, Bereknyei, & Braddock, 2010; Penner et al., 2013). Patients’ own voices, however, have been largely missing from the debate about how to improve clinician-patient relationships for minority patients and thus to reduce disparities in healthcare quality. In this study, we sought to understand the degree to which disparities in clinician-patient relationships arise from African American and Latina/Latino patients being treated differently from European American patients when they would prefer to be treated the same, versus being treated the same when they would prefer to be treated differently. To accomplish this we used focus groups to explore the experiences and perspectives of African American, Latina/Latino, and European American patients on their clinician-patient relationships.
Method
The study, known as Project EQUALED (Exploring the Quality of African American and Latina/Latino Experiences with Doctors), aimed to determine what constitutes good or bad relationships with clinicians from the perspectives of patients across three broad cultural groups comprised of African Americans, Latinas/Latinos, and European Americans. Employing several principles of community-based participatory research (CBPR; Israel, Schulz, Parker, & Becker, 1998), our research team included two community liaisons as active research team members meeting weekly with academic project staff during the formative phases of the project. We also enlisted the guidance of a community advisory board which provided input into recruitment approaches as well as revisions of the focus group discussion guide. The advisory board also provided input into the design of study recruitment flyers. Word-of-mouth invitations from advisory board members and from initial research participants helped the research team to involve the participation of community members in the focus groups. Research team members conducted the focus groups in community settings including public libraries and a locally-owned coffee shop.
Participant recruitment
We wanted to hear the experiences and views of adult community residents who were diagnosed with diabetes and/or hypertension because people living with these illnesses are seen routinely in primary care. We posted study flyers in a variety of venues, including restaurants, stores, barber and beauty shops, and we enrolled people during community events in Portland (African American participants) and Silverton, Oregon (Latina/Latino participants). To recruit for the European American groups we posted study flyers widely in predominately European American neighborhoods of Portland, Oregon. We limited our efforts recruiting European American participants to neighborhoods of modest socioeconomic status in order that our comparisons across ethnicity would not be conflated with socioeconomic differences. We avoided clinics and hospitals as recruitment sites because we wanted the sample to be truly community-based, not clinic-based, and because we did not want to oversample from any particular healthcare facility. We also asked participants and potential participants to talk about the study with other possibly eligible persons in their personal networks. The advertising flyers said that the project involved group discussion pertaining to the experiences that community members with diabetes, hypertension, or both of these, have with their doctors.
Upon telephoning the research office, interested community members were screened for eligibility (ethnicity and diabetes and/or hypertension diagnosis). Participants were told what some of the key questions would be in the focus group discussions (e.g., “Tell us about a good experience you had with a doctor”) and were briefed on key points that would be covered in the informed consent paperwork.
Focus groups
In keeping with principles of CBPR, moderators for the African American and Latina/Latino focus groups were recruited from these respective communities. Potential focus group moderators were first identified by community advisory board members and other community members. Potential moderators underwent an initial eight-hour training session addressing principles of focus group research, and including moderator practice as well as human subjects training. Moderators also received coaching throughout the study period. Each moderator also received an individual copy of the volume Moderating Focus Groups (Krueger, 1997). Focus groups with European American participants were moderated by European American members of the research team with assistance from another European American moderator.
Focus groups were segmented by ethnicity and gender, with moderators matched to discussion participants on these key characteristics. Typically one co-moderator asked questions and led discussion while the other co-moderator took notes and monitored the discussion to ensure balanced participation. The interviews were semi-structured in order to allow moderators the freedom to probe interesting topics that arose during the sessions (Tong, Sainsbury, & Craig, 2007). All focus groups with Latina/Latino community members were conducted in Spanish. Simultaneous translation using a remote microphone was used in order to allow research team members to follow the focus group discussions in real time (Esposito, 2001).
Focus groups began 15 to 20 minutes or so after the first participants arrived so that almost all participants had time to meet the members of the research team. Each place setting at the discussion table included informed consent paperwork that participants were able to review at their own pace before the discussion began; team members also answered individual participants’ questions about the study.
The focus group guide employed by the moderators was intended to solicit participants’ actual experiences in the healthcare system with particular attention to their interactions with physicians, including participants’ values and preferences relating to these interactions. The guide included questions about participants’ most recent visit to the doctor, their good experiences with doctors (and what makes a good experience), their bad experiences with doctors (and what would have made for a better experience), their experiences and preferences if any regarding a physician’s race/ethnicity, their perspectives on important relationship dimensions such as trust and respect, and their advice to doctors for improving the way doctors work with patients. Focus group participants were compensated $40 for their time. Study procedures were approved by the [detail omitted for anonymity] Institutional Review Board.
Analysis
The focus group discussions were audiorecorded. All dialogue was transcribed and transcriptions were placed into Microsoft Word documents. Documents were then imported into the qualitative software, NVivo 10, and each focus group was given its own file. The academic research team employed a thematic analysis approach in the analysis of transcripts, including six phases: familiarizing with data, generating initial codes, searching for themes among codes, reviewing themes, defining and naming themes, and producing the final report (Braun, Clarke, & Terry, 2014). Because the goal of the project was to report patients’ experiences and preferences regarding the patient-clinician relationship in patients’ own terms, the team adopted a realist framework for data analysis (Braun & Clarke, 2006).
In the first phase of analysis, three team members read the transcripts to become familiar with the content and discuss potential patterns that might exist in the data. In the second phase two team members independently coded 25% of the transcripts. Coders also kept notes (or memos) on issues on which they anticipated a need for clarification. All three team members then met to compare codes, to discuss areas of divergence and to reach agreement on coding and organization. In these discussions, team members took care to keep codes close to the transcript content, not yet identifying themes. After code agreement was reached, one team member (the first author) coded the remainder of the transcripts, applying a common set of codes and subcategories across all transcripts. During the third and fourth phases, the team members met frequently to discuss codes, particularly any newly emerging codes, and to reach agreement on the codes and sub-categories. They then reviewed the codes to develop themes capturing the essence of the given data. The team then discussed relationships between subthemes and the overarching themes. The team then examined patterns of difference and similarity across the three participant ethnic groups. During this process, the three team members were mindful of the different perspectives they brought to this analysis due to their backgrounds, with one investigator being a scholar of Latina/Latino and African American descent, two being social scientists, and one being a practicing primary care physician. Throughout the process, the research team reviewed analytic memos, discussed discrepancies of thinking, and reached agreement on analytic findings.
Results
A total of 142 adults participated in 27 focus groups segmented by ethnicity and gender, including five groups of African American women, five groups of African American men, five groups of Latina women, four groups of Latino men, four groups of European American women, and four groups of European American men.
Appendix A presents our summary of thematic findings, including both commonalities and differences among the three ethnic groups. In general we found substantially more commonalities than differences in patients’ preferences for care and in how they described good and bad experiences. Patients of all groups described experiences that reflected the concepts of patient-centered care. Across the three groups, patients wanted a personable provider who listened to their comments and paid attention to their problems. Patients also expressed their desire to be more participatory in the interactions with their providers and be more involved in their own care. Supplementary to these preferences, they wanted their clinicians to be attentive and sensitive to their needs. The following quote from one of the African American men participating in the study illustrates the common themes of open communication, listening, and valuing a patient’s perspective on the treatment regimen that were expressed by members in all three ethnic groups.
[What I would like from a doctor is] open communication. Being able to give and receive information. Being attentive to the patient’s needs. Taking recommendations from the patient, you know, versus always just on the tell and tell and tell, because the bottom line, you know your body better than anybody else. Now, the doctor’s there to help you understand what’s going on, but like the gentleman was saying down here, when he was in Alabama, all he knew, his foot was hurting. And then he came and told the doctor what was going on. He had to give him the information. And the doctor had to be able to listen to that, and then when he listened to that, then he was able to do what he was supposed to do. So it has to be open communication on both ends.
Ethnic difference in preferences
While the three groups shared similar criteria for good patient-provider relationships, there were some differences in preferences across ethnic groups.
Acknowledging patients’ racial/ethnic background
Some African American patients felt it was important for clinicians to consider the patient’s race in providing healthcare. For example, this patient felt clinicians should consider his racial/ethnic identity in working with him and formulating a treatment plan:
I expect him just to be polite and nice to me, and not just treat me as just another patient, another piece of my income, you know, you’re just another patient, another income. Treat me like, yes, this is a Black man, this is a Black man with diabetes, this is a Black man with diabetes and high blood pressure. I know that we have a problem with this as a race. I’ve learned other things being a Black man, about this particular problem that we have, and I’m going to inform him a little better than other people or, if I’m not going to inform him better than other people, I’m going to get him somebody that can.
Preference for ethnic and language concordance
African Americans varied in their preferences regarding the race of their physicians. Many African Americans said they did not care whether their doctor was African American or not as long as the doctor was competent. Similarly, European American patients reported indifference about physicians’ race. They wanted a clinician who showed respect and attentiveness during the interaction. Unlike the European Americans and many of the African Americans, most Latinas/Latinos preferred an ethnic- or language-concordant provider. Some did not have a preference for an ethnic-concordant provider as long as the provider knew Spanish, while others preferred a Latina/Latino provider, believing that Latina/Latino providers understand Latina/Latino experiences. The patients believed that language-concordant providers and ethnic-concordant providers communicate effectively with patients, enabling patients to understand their providers’ recommendations and allowing physicians to understand their patients’ explanations of their symptoms. For example, this Latino male participant preferred Latina/Latino clinicians because he felt patient and clinician would understand each other better:
I think the, the majority of us try to look for Latino doctors, because first of all the communication that I think more than anything that’s really indispensable. Just understanding each other. And by understanding each other, the results of the doctor will be better, because they know exactly the problem we have. At least I, where I go, they’re all Hispanic. And I feel good, I feel good going there.
Some Latinas/Latinos preferred that clinicians be knowledgeable about complementary and alternative medicine and spoke about their own use of alternative medicine to complement medicines obtained by prescription. Because they were concerned that the alternative medicine might cause complications, Latinas/Latinos wanted providers to be informed and to have better connections with herbalists. As this Latina participant said:
I would like my doctor to speak Spanish, but I would like them to know more about alternative medicine, like herbs, ‘cause I use that a lot. I use a lot of Chinese medicine and herbs. I would like them to ask me about going to a curandero… There’s a lot of people nowadays that use that kind of medicine and therapy. I would like for them to ask me that question... [I want them] to study more about alternative medicine, so they can have an intelligent conversation with the patients and know that that doesn’t coincide with the medicine he wants to give me. Not just say, “No, don’t take it.”
Ethnic difference in experience
Perceived discrimination among African Americans
Some African American participants had experienced negative events before they saw the clinician, including long waits in the waiting or exam room. While some patients did not know whether the long waits were based on their ethnic background or not; these ambiguous events negatively influenced their healthcare experience prior to seeing the clinician. African American patients also spoke about the personable welcomes they sometimes observed European American patients receiving from non-medical staff compared to the cold, business-like greetings they themselves received and indicated that this negatively affected their mood. One woman shared her experience about the unequal treatment she received from non-medical staff.
Well, um, my primary care doctor, doctor of internal medicine, is very helpful towards me, and she goes out of her way to help me, but I notice… when I’m in the receptionists’ area, the receptionists seem more willing to chit-chat with the white clients that come through than they are with me. They’ll have them standing there talking to them and laughing and joking, and when I step up and make a comment, you know, it’s all business. I feel (laughs), I feel like they’re prejudiced.
In the clinician’s office, African Americans often perceived unfair treatment from their clinicians. Many African Americans felt that clinicians did not provide them with pain medication because clinicians perceived them as drug users. For example, this African American woman shared her experience dealing with pain and how she felt she did not receive medication because clinicians see African Americans as drug addicts.
When I flare all up, I take something, you know, so I like to have something just because my pain goes from my toes all the way up to my neck and shoulders sometimes. I can hardly function, and I need something, and that’s why I’ve been saying, give me something or tell me something I can do. I need help and that’s my biggest gripe. I think it’s because I’m a Black woman I don’t get no medication or no kind of other kind of treatment because we got a reputation of being drug addicts and stuff.
Discrimination based on health insurance coverage
African Americans perceived discrimination within the healthcare system based on the insurance they had or lacked. They felt they would receive better treatment if they had better insurance coverage. For example, this patient mentioned that he felt that the healthcare staff treats patients better if they have insurance. He believed that hospitals are businesses that give preferential treatment to those with insurance.
And this is a good example of how when, you know, even though, in the medical, in the medical field, it still, the overarching… the denominator is dollars and cents. If you have insurance, they will treat you… they will roll out the red carpet. If you don’t, I mean, it’s challenging. And so [they] rush me out the hospital... Unfortunately, the hospital is a business, I mean, it’s a business, and at the end of the day, they sitting down seeing… Well, that’s our life.
Similar to African Americans, European Americans felt their lack or availability of insurance played a role in the healthcare service they received. For example, this patient described her experience of being refused service because of her lack of healthcare insurance.
I lived in another city and I had some very serious heart problems, so they sent me to Portland and I was admitted to this hospital and they started running all these tests... I went in to the doctor to make the arrangements and he said, “I’m going to have to send you home.” My husband says “You’re going to send her home, why?” And this doctor says, “Because you have no insurance.” And my husband says “Are you sending her home to die?” and he says “Yes, basically that’s what I’m doing,” and I got up and walked out the door. They called me back, they told my husband that 3 more minutes and I would have been dead. And I had a 2-way bypass, but I was refused at one of the hospitals in Portland because of no insurance.
Discussion
We explored the degree to which disparities in the quality of clinician-patient relationships arise from ethnic minority patients being treated differently than European American patients when those minority patients would prefer to be treated the same as European American patients, versus the ethnic minority patients being treated the same as European American patients when preferring to be treated differently. Although we found evidence for both, our findings suggest that in general, patients have similar preferences but receive unequal treatment. There were substantially more commonalities than differences in patients’ preferences for care and in how they described good and bad experiences. Patients of all groups described preferences reflecting the concepts of patient-centered care (Epstein & Street, 2011), in that patients wanted a personable provider who listened to their comments and was attentive and sensitive to their needs. Patients also expressed their desire to be more involved in their own care.
While preferences for care were mostly similar across groups, experiences differed in ways that patients, particularly African American patients, perceived as discriminatory. Long waits in the waiting room or exam room made many wonder whether the delay was a response to their racial or ethnic background, negatively influencing their healthcare experience prior to seeing the clinician. During the wait, many felt that the non-medical staff treated them differently than European American patients. They perceived the interaction between office staff and European American patients as warm and welcoming, and their own interaction with office staff as cold and business-like. African Americans also often perceived unfair treatment from the clinicians themselves. Many African Americans felt that clinicians did not provide them with pain medication because clinicians perceived them as drug users.
There were some differences in preferences within and across ethnic groups. Some African American patients felt clinicians should take patients’ race/ethnicity into account when discussing their health. They felt that clinicians may be able to deliver better care if the patients’ race were acknowledged. Some Latinas/Latinos preferred ethnic- or language-concordant providers. They believed that these providers were more proficient communicators who helped them understand the treatment regimen and allowed them to share their perspectives about their own health. Lastly, some Latinas/Latinos who used alternative medicines (e.g., herbs and roots) wanted providers to be more knowledgeable of alternative medicine and discuss how it may or may not complement their current treatment regimen. It is not surprising that Latina/Latino patients preferred ethnic- or language-concordant providers. The extant literature shows that Latinas/Latinos report healthcare problems pertaining to cultural issues, language, and lack of culturally-matched healthcare providers (González, Vega, & Tarraf, 2010; Timmins, 2002). However, we were surprised that many African American patients were indifferent on the question of race-concordant physicians. Upon further reflection we believe that African American patients may not view the clinician’s race as important as other dimensions of the clinician’s characteristics, such as communication style (Dale, Polivka, Chaudry, & Simmonds, 2010). Sacks (2013) also did not find a uniform preference for race concordant providers among African American female patients. She found that the environmental constraints in healthcare (e.g., wait times, quality of interpersonal interactions) were more important for the patients than having a race concordant clinician. Based on our findings as well, most African Americans did not believe that having race concordant clinicians would in itself assure the delivery of quality healthcare. In contrast, Latinas/Latinos in our study felt that having culturally-matched providers would assure good quality of care. Because this was a salient issue for them, the need felt by Latinas/Latinos for an ethnically concordant clinician may have kept Latinas/Latinos from mentioning other barriers that also affect their healthcare experiences. In sum, our findings indicate that racial or ethnic concordance is not always identified by patients themselves as important; even so, improving access to culturally-sensitive healthcare may help address many concerns of minority patients.
Using focus groups, Tucker et al. (2003) found that African American, Latina/Latino, and European American primary care patients shared similar values, reflecting dimensions of patient-centered care. For example, patients preferred providers that had “people skills” such as listening and expressing empathy. They also preferred individualized treatment in which the provider made them feel special. Tucker and colleagues also revealed some ethnic-group-specific themes. For example, African Americans expressed dissatisfaction with the lack of culturally-tailored materials for African Americans in patient waiting areas, and with the insensitive behaviors exhibited by the medical staff. Latinas/Latinos expressed concerns about the impact of language barriers on their levels of trust and comfort with their clinicians. Barr and Wanat (2005) found similar results. In their focus group study, African Americans expressed concerns about the lack of culturally appropriate informational materials at healthcare organizations and the rude, unhelpful medical staff. Latinas/Latinos reported the unavailability of Spanish-speaking staff, incompetent interpreters, and physicians’ intolerance towards patients with limited English proficiency. Interestingly, discrimination was a pervasive theme among Latinas/Latinos in both the Tucker et al. (2003) and Barr and Wanat (2005) studies, but was not a major theme among Latinas/Latinos in our study. This difference may have been driven by the focus group questions, by moderators’ facilitation of discussions or by regional differences in care.
The reports from African American and Latina/Latino participants in our study may echo reports by members of other ethnic minority groups in the US or other geographic settings. In Aotearoa/New Zealand, for example, work by Cram, Smith and Johnstone (2003) found that when asked to describe healthcare experiences in a focus group context, many Māori patients reported past discriminatory experiences in healthcare either for themselves or for important others in their lives. Māori patients reported a cultural disconnect between themselves and non-Māori clinicians. Similar to participants from all three ethnic groups in our own study, Māori patients expressed the importance of interpersonal rapport with clinicians including clinicians listening to them and attending to their needs. Conversely, research by McCreanor and Nairn (2002) into the ways that physicians talked about Māori patients’ needs revealed patterns of physician language that often construed protocol nonadherence as a problem arising from patients’ health attitudes or from Māori culture—rather than patterns of language that sought to understand how patients viewed their own needs.
While our findings provide a better understanding of patients’ perspectives and experiences with healthcare, there are some limitations to this study that need to be considered. We recruited community members from only three ethnic groups. We focused on African Americans, Latinas/Latinos, and European Americans as they are the three largest racial or ethnic groups in the United States (US Census Bureau, 2014). Community members were recruited from Oregon, a state in the US with a predominantly White population (US Census Bureau, 2014); African Americans’ and Latinas/Latinos’ experiences of being minority group members may differ from residents of other regions. For example, African Americans in Portland or Latinas/Latinos in Silverton may have few opportunities to see a non-White clinician, which may limit their sharing of narratives about race-concordant clinicians. Further, Latina/Latino focus group members were Spanish-speaking immigrants all or almost all of Mexican descent, whose healthcare experiences may differ from non-immigrant Latinas/Latinos or from other Latina/Latino immigrants. In addition, we investigated patients’ reports about their experiences in healthcare, but we did not directly observe these experiences. While direct observation may provide a better understanding of actual patient experiences, patients’ reports provide the best evidence of how experiences are internalized. Lastly, we employed a realist framework to our analyses, which limits the research team from engaging the findings within the sociocultural and structural contexts of the patients. Although a constructionist framework would have allowed us to address structural and societal conditions that affect patients’ healthcare experiences, the purpose of Project EQUALED was to give voice to patients’ own healthcare experiences and perspectives concerning patient-clinician relationships. Rather than asking patients to contextualize their experiences, we intentionally focused on the factors considered by patients themselves to facilitate or impede quality healthcare.
Despite these limitations, this study offers insight into opportunities for cultural competency training to improve quality of care for ethnic minority patients. In the study, patients across groups expressed strong sentiments about receiving patient-centered care, suggesting the importance of a patient-centered approach to cultural competency training (Epner & Baile, 2012; Tucker, Marsiske, Rice, Nielson, & Herman, 2011). Using a patient-centered care approach may help clinicians identify and negotiate different styles of communication, decision-making preferences, family roles, sexual and gender issues, and issues of mistrust and racism (Epner & Baile, 2012).
Evidence in the literature that clinicians’ explicit and implicit biases negatively affect patient-provider interactions (Penner et al., 2013) coupled with the finding in the current study that African American patients perceived discrimination and bias from clinicians and medical staff indicates that targeting clinical and non-clinical staff attitudes and behaviors is an important aspect of training to reduce disparities in healthcare delivery (Cuevas, O’Brien, & Saha, 2016). Emphasizing aspects such as cultural sensitivity and awareness may help reduce both conscious and unconscious biases toward members of ethnic minority groups.
Some African Americans and Latinas/Latinos preferred care that was culturally tailored. For example, some African American patients felt it was appropriate to contextualize their care racially and ethnically, while most Latinas/Latinos preferred language- and culturally-concordant clinicians. It is important, however, to proceed with caution in acting on these findings, because they can potentially lead to stereotypical teaching strategies (such as treating all African Americans in a particular manner), which may have adverse effects on patients’ experiences. It is also unrealistic for healthcare providers to become experts in working with members of all cultural and ethnic groups; it may be reasonable, however, for providers to understand the cultural contexts of the major ethnic groups in their patient population. Providers can collaborate with language interpreters or with cultural brokers, who serve as mediators between the culture of the patient’s group and both the majority culture and the culture of medical institutions, in order to improve patients’ experiences (Brisset, Leanza, & Laforest, 2013; Nápoles, Santoyo-Olsson, Karliner, Gregorich, & Pérez-Stable, 2015). Increasing the number of African American and Latina/Latino clinicians would afford more opportunities for race concordance with African American and Latina/Latino patients in order to provide improved quality of care. Yet, we have to proceed with caution with this suggestion. Based on our findings, increasing the number of minority staff and physician alone may not resolve the many issues that these patients feel are barriers to receiving appropriate care.
Important though it is, the patient-clinician relationship is not the only pathway to reducing healthcare disparities for African Americans and Latinas/Latinos. Societal structures such as employment, access to quality care, and segregation likely give rise to many of these disparities and cannot be ignored (White, Haas, & Williams, 2012; Williams, Mohammed, Leavell, & Collins, 2010; Zuvekas & Taliaferro, 2003). To comprehensively address healthcare disparities, efforts to improve patient-clinician relationships will need to be combined with other initiatives aimed at reducing institutionally discriminatory practices and addressing other barriers, including inadequate access to care, limited English proficiency, and low health literacy (Shavers & Shavers, 2006).
Conclusion
In this study, we explored whether disparities in patient-clinician relationships arise from ethnic minority patients being treated differently from European American patients, when they would prefer similar treatment, versus ethnic minority patients preferring to be treated differently than European American patients. We found evidence for both viewpoints, suggesting that a patient-centered approach to cultural competency training, responsive to individual patient concerns and coupled with general knowledge of the cultural context of the major population groups being cared for, may reduce disparities in the quality of care patients receive. Increasing workforce diversity and collaborating with interpreters and cultural brokers may help facilitate these efforts. Attention to the negative effects of racial bias and discrimination among clinicians and non-clinical staff could also lead to greater equity in healthcare delivery.
Supplementary Material
Acknowledgments
We thank study participants as well as the community leaders and organizations whose expertise and collaboration helped to create Project EQUALED and ensure its success.
Funding
Project EQUALED was funded by a grant from the [detail omitted for anonymity]. The preparation of this article was supported by the [detail omitted for anonymity]. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the [detail omitted for anonymity].
Footnotes
Disclosure statement
No potential conflict of interest was reported by the authors.
Contributor Information
Adolfo G. Cuevas, Department of Psychology, Portland State University, Portland, Oregon, USA
Kerth O’Brien, Department of Psychology, Portland State University, Portland, Oregon, USA.
Somnath Saha, Portland Veterans Affairs Medical Center, Public Health & Preventive Medicine, Medical Informatics & Clinical Epidemiology, Oregon Health & Science University, Portland, Oregon, USA.
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