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. Author manuscript; available in PMC: 2018 Sep 1.
Published in final edited form as: Heart Fail Rev. 2017 Sep;22(5):543–557. doi: 10.1007/s10741-017-9597-4

1. Characterize the impact of caregiving in the last year of life and during after-death grief and bereavement period.
2. Identify successful caregiver coping strategies for distinct situations along the heart failure trajectory (e.g. emergent hospital visits, new symptom or device management).
3. Assess the magnitude of caregiving challenges, coping, and outcomes over the course of heart failure illness.
4. Conduct more in-depth research on specific areas of unmet needs (e.g. managing symptoms, understanding heart failure and prognosis, and handling emergencies).
5. Investigate how and when palliative care can be effectively introduced to patients and families affected by heart failure.
6. Identify factors related to having more difficulty providing care to patients with LVADs and develop interventions to ease the decision-making and transition processes for patients and caregivers.
7. Establish prevalence rates of negative psychological outcomes and risk factors in the caregiver population.
8. Assess the financial and time burden of caregiving across the heart failure trajectory
9. Explore modifiable mechanisms between risk factors and negative outcomes for caregivers