Table 2.

Themes identified across the six domains in the semi-structured interview

THEME	Frequency (n = 17 interviews)
DOMAIN 1: Impact of treatment
Negative emotional reactions to treatment	10
Missing school for treatment	7
Anxiety about improvement	5
Avoidance	5
Side Effects	5
Anticipatory nausea	4
Painful Injections	4
Difficulty swallowing tablets	3
DOMAIN 2: Complications
Cataract removal	6
Poor vision/blurring	6
Glaucoma surgery	3
DOMAIN 3: Impact on School
Difficulties reading information	9
Upset at missing lessons	8
Teachers forgetting	7
Anxiety about catching up with missed work	5
Difficulties seeing the ball in PE	4
Upset at missing friends/activities at school	4
DOMAIN 4: Impact outside school
Needing adaptations in order to participate	5
Not able to see bus numbers readily	4
DOMAIN 5: Social Factors
Being excluded	8
Not chosen as team member	6
Bullying	4
Self-exclusion	2
DOMAIN 6: Emotional Reactions
Distress/sadness about illness	11
Fear	9
Anger	8
Worry about deterioration	7
Worry about going blind	7
Worry about the future/careers	6
Why me?	2