Table 2.
Information seeking behaviors post-disclosure
| 3 months post-disclosure | 6 months post-disclosure | |||||
|---|---|---|---|---|---|---|
|
| ||||||
| Information Seeking: via websites or patient portals | CRS n=100 (%) | GRS n=103 (%) | P-value | CRS n=100 (%) | GRS n=103 (%) | P-value |
| Have you looked for information about how personal health habits, such as your diet and exercise, affect CHD risk? | 56 (56) | 64 (62) | 0.61 | 37 (37) | 47 (46) | 0.17 |
| Have you looked for information about how genetic factors affect CHD risk? | 39 (39) | 32 (31) | 0.15 | 15 (15) | 27 (26) | 0.04 |
| Do you have access to your Patient Portal? | 78 (78) | 84 (82) | 0.35 | 71 (71) | 77 (75) | 0.46 |
| If yes, did you sign-up for the Patient Portal after study enrollment? | 4 (4) | 5 (5) | 0.82 | 5 (5) | 11 (11) | 0.21 |
| Did you use the Patient Portal to access information related to your CHD risk during this study? | 15 (15) | 17 (17) | 0.83 | 10 (10) | 25 (24) | 0.01 |
| After study enrollment, did you search for “Direct-to-Consumer” genetic testing websites? | 0 (0) | 0 (0) | 1.00 | 0 (0) | 3 93) | 0.25 |
|
| ||||||
| Internet Use: Online activity and electronic communication | CRS n=100 (%) | GRS n=103 (%) | P-value | CRS n=100 (%) | GRS n=103 (%) | P-value |
|
| ||||||
| In the past 3 months, have you used the Internet to look for CHD information for yourself? | 17 (17) | 17 (17) | 0.90 | 8 (8) | 21 (20) | 0.01 |
| Is there a specific Internet site you like to go to for CHD information? | 9 (9) | 16 (16) | 0.17 | 5 (5) | 10 (10) | 0.21 |
| In the last 3 months, have you used the Internet for any of the following? | ||||||
| A. Used e-mail/Internet to communicate with a doctor’s office? | 48 (48) | 45 (44) | 0.74 | 41 (41) | 47 (46) | 0.33 |
| B. Looked for health/medical information? | 64 (64) | 68 (66) | 0.66 | 61 (61) | 71 (69) | 0.21 |
| C. Used a website to help with diet, weight, or physical activity? | 36 936) | 44 (43) | 0.31 | 28 (28) | 36 (35) | 0.24 |
| D. Kept track of personal health information? | 63 (63) | 62 (62) | 0.71 | 56 (56) | 63 (61) | 0.25 |
| E. Do anything else health-related on the Internet? | 26 (26) | 39 (38) | 0.06 | 28 (28) | 41 (40) | 0.05 |
| F. Visit a web site to learn specifically about CHD? | 10 (10) | 20 (19) | 0.07 | 4 (4) | 14 (14) | 0.01 |
Numbers/percentages for the response ‘Yes’ are shown. CHD: coronary heart disease; CRS: conventional risk score; GRS: genetic risk score.