Table 2.
Psychometrics of final short-form version of HCI
| Subscale | Item content summary | CFI | RMSEA (90% confidence interval) | Factor loading | Score range | Alpha reliability | Test–retest stability |
|---|---|---|---|---|---|---|---|
| Practical Impact | Ordering supplies, preparing medication | 1.00 | 0.00 | 0.70 | 37.2–80.5 | 0.78 | 0.67 |
| Medical appointments | (0.000, 0.000) | 0.85 | |||||
| Travel to hospital | 0.81 | ||||||
| Symptom Impact | Witness pain | 0.99 | 0.08 | 0.76 | 28.0–68.9 | 0.81 | 0.68 |
| Worry about pain during infusions | (0.041, 0.115) | 0.58 | |||||
| Worry about bleeding pain | 0.88 | ||||||
| Suffer when see pain | 0.83 | ||||||
| Distressed with breakthrough bleeding | 0.62 | ||||||
| Lifestyle Impact | Not enough time for self | 1.00 | 0.04 | 0.92 | 36.9–73.9 | 0.90 | 0.74 |
| Stressed | (0.000, 0.108) | 0.93 | |||||
| Give up exercise | 0.84 | ||||||
| Family gives up things | 0.79 | ||||||
| Social Impact | Worry about family impact | 0.99 | 0.21 | 0.77 | 38.1–79.8 | 0.89 | 0.79 |
| Limited time for other family members | (0.159, 0.268) | 0.86 | |||||
| Stressed as a family | 0.89 | ||||||
| Strain with spouse/partner | 0.83 | ||||||
| Physical Impact | Fatigue | 0.99 | 0.06 | 0.91 | 39.0–77.5 | 0.93 | 0.9 |
| Sleepless nights | (0.025, 0.103) | 0.90 | |||||
| Tired emotionally and physically | 0.93 | ||||||
| Appetite changes | 0.89 | ||||||
| Health suffered | 0.86 | ||||||
| Emotional Impact | Ups and downs | 1.00 | 0.02 | 0.88 | 37.7–76.1 | 0.91 | 0.89 |
| Lost control | (0.000, 0.071) | 0.90 | |||||
| Always on edge | 0.89 | ||||||
| Stress overwhelming | 0.78 | ||||||
| Impending doom | 0.87 | ||||||
| Financial Impact | Financial burdens on family | 1.00 | 0.08 | 0.72 | 37.9–73.1 | 0.88 | 0.78 |
| Interfere with job or daily activities | (0.044, 0.118) | 0.86 | |||||
| Lost time from work | 0.88 | ||||||
| Take turns going to work | |||||||
| Cut down work hours | 0.84 | ||||||
| Positive Emotions | Feel better about self | 1.00 | 0.10 | 0.73 | 19.6–62.2 | 0.88 | 0.8 |
| More compassionate | (0.067, 0.139) | 0.66 | |||||
| Stronger person | 0.94 | ||||||
| Inner strength | 0.97 | ||||||
| Sense of perspective | 0.83 |
Response options: 5 = all of the time, 4 = most of the time, 3 = some of the time, 2 = a little of the time, 1 = none of the time, −99 = not applicable/prefer not to answer. Scoring for all subscales except Financial Impact is the mean of the non-missing items if no more than one item is missing. Scoring for the Financial Impact subscale is the mean of all non-missing items, with no constraints on the number of allowable missing items. This is to ensure that a Financial Impact subscale estimate is possible even when the caregiver is not working and/or married/with a partner. Interpretation: Higher scores on all but the Positive Emotions subscales indicate worse burden; on the Positive Emotions subscale, higher scores indicate more positive aspects of caregiving