Figure 1.

Age at CHH diagnosis and self-reported adherence to treatment. (A) Age at CHH diagnosis for 55 women ranged from 10 to 48 years. The mean age at menarche for Caucasian females is shown as a horizontal line, and the shaded region depicts ± two s.d. (36). Only 11/55 women were diagnosed by age 15 years. (B) Self-reported adherence to treatment (n = 49). Approximately one-quarter of respondents reported never having a gap in treatment. In total, more than half (27/49) reported a gap in treatment of a year or longer. Similarly 20/46 women reported having a lapse in health care exceeding one year (data not shown). Age at diagnosis was moderately correlated with duration of gap in health care (r = 0.56, P < 0.001).