. 2017 Jul 11;6(6):404–412. doi: 10.1530/EC-17-0095
This work is licensed under a Table 2.
Health care experiences of women with CHH (n = 55).
| n (%) | |
|---|---|
| Medical history | |
| Seen at a specialized academic medical center | 34 (62%) |
| Genetic testing performed | 25 (45%) |
| Genetic counseling received | 11 (20%) |
| Sought psychological counseling | 16 (29%) |
| Health care interactions | |
| Provider understands medical aspects of CHH | 28 (51%) |
| Provider understands patient’s feelings of living with CHH | 14 (25%) |
| Provider discussed or gave referral for counseling | 15 (27%) |
| Experienced discrimination in the health care system | 15 (27%) |
| Treatment and adherence | |
| Duration of treatment: mean ± s.d. (range, median) | 16 ± 10 years (1–42, 17) |
| MMAS low adherence | 34 (62%) |
| Medium adherence | 12 (22%) |
| High adherence | 9 (16%) |
| Fertility outcomes | |
| Received fertility-inducing treatment | 20/55 (36%) |
| Biologic children | 16/20 (80%) |
MMAS is protected by US copyright laws. Permission for use is required. A license agreement is available from: Donald E. Morisky, ScD, ScM, MSPH, Professor, 294 Lindura Ct., Las Vegas, NV 89138-4632.