Table 5.
Distribution of documents on each topic on cancerdusein.org and Facebook.
| Questionnaires and their scales | Questionnaire items | cancerdusein.org | |||
| EORTC QLQ-C30a | |||||
| Functional scales | |||||
| Physical functioning | 1-5 | Everyday life during cancer | Treatment period | ||
| Treatment period | |||||
| Role functioning | 6, 7 | Everyday life during cancer | |||
| Emotional functioning | 21-24 | Diagnosis | Diagnosis | ||
| Breast cancer as a daily battle | Breast cancer as a daily battle | ||||
| Waiting for results of analysis, concerns | Anxiety and fatigue | ||||
| Support from patient’s family and friends | Support from patient’s family and friends | ||||
| Cognitive functioning | 20, 25 | Search for medical information | |||
| Media and forum information exchange | |||||
| Social functioning | 26, 27 | Support from patient’s family and friends | Support from patient’s family and friends | ||
| Work life during cancer and financial aspects | Work life during cancer and financial aspects | ||||
| Symptom scales | |||||
| Fatigue | 10, 12, 18 | Chemotherapy and its secondary effects | Anxiety and fatigue | ||
| Secondary effects of treatments | |||||
| Nausea and vomiting | 14, 15 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Pain | 9, 19 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Surgery | |||||
| Dyspnea | 8 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Insomnia | 11 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Appetite loss | 13 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Constipation | 16 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Diarrhea | 17 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Financial difficulties | 28 | Work life during cancer and financial aspects | Work life during cancer and financial aspects | ||
| Global health status | |||||
| Global health status and quality of life | 29, 30 | ||||
| EORTC QLQ-BR23b | |||||
| Functional scales | |||||
| Body image | 39-42 | Breast reconstruction | Breast reconstruction | ||
| Body care and body image during cancer, and sexuality | Body care and body image during cancer | ||||
| Surgery | |||||
| Sexual functioning | 44, 45 | Body care and body image during cancer, and sexuality | Sexuality | ||
| Sexual enjoyment | 46 | Body care and body image during cancer, and sexuality | Sexuality | ||
| Future perspectives | 43 | Healing | Healing | ||
| Relapse | |||||
| Symptom scales | |||||
| Systemic therapy | 31-34 | Chemotherapy and its secondary effects | Secondary effects of treatments | ||
| Side effects | 36-38 | Hormone therapy and its secondary effects | Chemotherapy and its secondary effects | ||
| Breast symptoms | 50-53 | Breast reconstruction | Breast reconstruction | ||
| Radiotherapy and its secondary effects | |||||
| Surgery | |||||
| Arm symptoms | 47-49 | Breast reconstruction | Breast reconstruction | ||
| Surgery | |||||
| Hair loss | 35 | Hair loss | Hair loss | ||
| Topics without a relationship | |||||
| Complementary and alternative medicine | |||||
| Mourning | |||||
| Family background and breast cancer | |||||
| Family members with breast cancer | Family members with breast cancer | ||||
| Healing of family member | |||||
aEORTC QLQ-C30: European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30.
bQLQ-BR23: breast cancer module.