Table 1.
Parent and child characteristics (11 parents of 9 children).
| Parent gender | f = 8; m = 3 |
| Parent age (years) | Md = 43; R = 36–50 |
| Child gender | f = 5; m = 4 |
| Child age at death (years) | Md = 7.8; R = 0.4–23.8 |
| Child illness | Cancer (n = 3), spinal muscular atrophy type I (n = 1), cystic fibrosis (n = 1), leukodystrophy (n = 1), hypoplastic left heart syndrome (n = 1), complex malformation syndrome (n = 1), unknown syndrome (n = 1) |
| Place of death | Home: n = 6a; hospital: n = 3b |
| Time since death (years) | Md = 2.2; R = 1.3–3.6 |
| AD | AD: n = 2; no AD: n = 3; not sure: n = 4 |
f: female; m: male; Md: median; R: range; AD: advance directive.
a
Specialized pediatric palliative home care provided.
b
Only clinical consultations by the specialized pediatric palliative home care team.