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. 2017 Aug 16;17:11. doi: 10.1186/s12895-017-0063-8

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© The Author(s). 2017

Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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Fig. 1 — Typical follow-up schedule for patients in the COPPAR registry. : Baseline visit with Informed Consent, Physician Assessment, Patient Questionnaire, labs and sample collection. i: Internet based abbreviated Patient Questionnaires. : Follow-up visit with Physician Assessment, Patient Questionnaire and labs

Inline graphic — Typical follow-up schedule for patients in the COPPAR registry. : Baseline visit with Informed Consent, Physician Assessment, Patient Questionnaire, labs and sample collection. i: Internet based abbreviated Patient Questionnaires. : Follow-up visit with Physician Assessment, Patient Questionnaire and labs