Table 2.
Measurement of Burden and Correlates
| Author | Outcome Variables | Assessment Measure |
|---|---|---|
| Akgul & Ozdemir, 2014 | Burden | Zarit Burden Interview (ZBI) The Caregiver Questionnaire (IGM) |
| Armoogum, Richardson, & Armes, 2013 | Unmet supportive care needs | Supportive Care Needs Survey Partners and Carers (SCNS-P&C) General Health Questionnaire (GHQ12) |
| Bevans et al., 2014 | Self-Efficacy Psychological Distress Health Behaviors Sleep Quality Fatigue Relationship Quality |
Cancer Self-Efficacy Scale-transplant (CASE-t) Brief Symptom Inventory – 18 (BSI-18) HPLP-II Pittsburgh Sleep Quality Index (PSQI) Multidimensional Fatigue Symptom Inventory – Short Form (MFSI-SF) Family Caregiving Inventory (mutuality scale) |
| Bishop et al., 2011 | Long lasting negative changes after cancer | Qualitative Interviews |
| Cooke et al., 2011 | Relationship quality Rewards of caregiving Predictability Role strain/activities Quality of Life |
Mutuality Scale Rewards of Caregiving Scale Predictability Scale Caregiver Activities and Role Strain (IGM) City of Hope QOL-Family |
| El-Jawahri et al., 2015 | Quality of Life Anxiety and Depression Depressed Mood |
Functional Assessment of Cancer Therapy-Bone Marrow Transplant (FACT-BMT) Hospital Anxiety and Depression Scale (HADS) Patient Health Questionnaire – 9 (PHQ-9) |
| Jim et al., 2014 | Anxiety Insomnia Helplessness Guilt Fatigue Fear of Cancer Recurrence |
Qualitative Interviews/Focus Groups |
| Langer et al., 2010 | Marital Adjustment | Dyadic Adjustment Scale (DAS) |
| Langer et al., 2012 | Positive and Negative Affect | Positive and Negative Affect Schedule (PANAS) |
| Laudenslager et al., 2015 | Control Over Stress Depression State Anxiety Caregiver Burden Total Mood Disturbance Sleep Quality Mental and Physical Health Trauma |
Perceived Stress Scale Center for Epidemiological Studies Depression Scale (CES-D) State-Trait Anxiety Inventory (STAI) Caregiver Reaction Assessment (CRA) Profile of Mood States (POMS-TMD) Pittsburgh Sleep Quality Inventory (PSQI) Short Form Health Survey Version 2, SF-36) Impact of Event Scale (IES) |
| Sabo, McLeod &Couban, 2013 | Caregiver Burden Depression Secondary Trauma |
Caregiver Quality of Life – Cancer (CQOLC) Center for Epidemiological Studies Depression Scale (CES-D) Professional Quality of Life Scale (PRO-QOL-R-IV) Qualitative Interviews |
| Simoneau, et al., 2013 | Caregiver Burden Stress Health Affect |
Caregiver Reaction Assessment (CRA) Perceived Stress Scale (PSS) Impact of Events Scale (IES) Short Form Health Survey (SF-36) Pittsburgh Sleep Quality Index (PSQI) Profile of Mood States (POMS) Center for Epidemiological Studies Depression Scale (CES-D) |
Note.
*
Investigator Generated Measure