Questions asked to parents/caregivers of children with SB
-How has been the experience of taking care of your child? -Can you share the experience of feeding your child? -Can your child suck milk properly? Can your child chew soft foods? -Can your child swallow food properly? Is your child able to feed itself?	-What happens when your child wants to eat or drink something? Can she/he express the need for something to eat or drink? -Can she/he feed herself? Can your child sit during feeding and bathing? Can she/he dress and undress himself?
-How is toileting done? -Can your child show the need to go to pass urine? Open the bowel? -Can your child brush her/his teeth? -Can she manage her/his shoes? Socks? -Can your child talk? Can your child communicate? -Can your child pick up objects? -How is the activity in the hands? Can your child play with the hands? Can your child lift up objects?	-How is the movement in bed? Can your child turn in bed? Change positions in bed? -How is the mobility in your child out of bed? Can your child crawl? Stand, walk, run? -Can your child carry small things when crawling, walking? -Is your child able to move in the home and outside the home? -How is the balance in sitting? When bathing? When eating?
-Does your child go to school? -Does your child go to church? -Can your child play alone, with peers? -Can your child play with adults? -Does your child participate in home activities?	-Does your child recognise her/his name? respond to stimulus? -How does your child relate with the family members and other people? -Can your child recognise familiar faces? -How is the sense of hearing in your child?
Questions asked to youths with SB
-How independent are you? -How do you manage your bladder and bowel activities? -How many times do you open the bowels in a day? -What do you use for protection if you cannot control your bladder and bowel? -Do you manage to clean yourself after using the toilet?	-Can you manage to prepare water for a bath if you have no tap water? -Can you dress yourself and undress? -Who manages your shoes? Socks? -Can you button up your shirt?
-What are your responsibilities? -How much do you participate in activities of the home like cooking, sweeping and drawing water? -Do you participate in any activities outside the home? If so, what activities? -What roles do you play at home? -How is the laundry done? -Who washes and irons your clothes? -How entrusted are you in family chores? -Can you go to the shops to buy things?	-How is the sensation in the legs? -Can you feel when you touch your feet? -Do you manage to check your skin in your feet? -Can you sweep your bedroom? Other rooms in the house? -Can you go visiting alone? -How involved are you in food preparation? -Can you make your own food? -Can you help prepare food for the family
-How mobile are you and how do you function in the home? -How is your relationship with family members and non-family members? Do you have friends? Do you visit them? -Do they visit you? What games do you enjoy watching? Do you play any games at all? What games do you like playing?	-Do you go to school? -If in school, how is your experience? -Have you been to college? -If so, how was your experience in college?
Questions discussed with caregivers of children with SB
-Can we discuss experiences of taking care of our children -How has been the experience of feeding the children? -Can your child express the desire to eat and drink? -How can you tell that your child wants something to eat or drink?	-Let us discuss issues of movement: -Can one share how her child moves in the house from one place to another? -How is the experience of standing, walking and running?
-Can we talk about movements the children can do: -Is there any form of activity in the arms? -Can anything be lifted? -Can your child touch its mouth? -Is there any movement in bed? -Can your child come to sitting from lying in bed?	-Let us talk about communication and relationships -How does your child relate with people around and those who visit in the home? -Can your child talk? -Can your child communicate the need to eat, drink, go to the toilet or even the need to play or others?
-Let us talk about participation of our children: -What activities does your child do to participate in the activities of the home? -Does your child participate in home activities? Bathing experience? -Can your child brush her/his teeth? -Can she/he dress himself?	-Let us talk about personal care: -Does the child play with others? -Can your child feel when you touch the legs and feet? -Does your child go to school? -Can she/he manage her/his shoes? -Can she/he show the need to go to pass urine?
Questions discussed with youths with SB
-Can we discuss our personal experience of independence -How independent are we in feeding? -Can you express what you desire to eat and drink?	-Let us discuss issues of movement: -How mobile are you? Can anyone share the experience of moving in the house from one place to another? How are the standing, walking and running?
-Can we talk about your movements: -Is there any form of activity in the arms? -Can anything be lifted? -Can you touch the mouth? -How is the movement in bed? -Can you come to sitting from lying in bed?	-Let us talk about communication and relationships -How easy is it for you to communicate? -How do you relate with people around and those who visit in the home? -Can you communicate the need to eat, drink, go to the toilet or even the need to do other things?
-Let us talk about your participation: -What activities do you participate in? Do you participate in home activities? Bathing experience? Can you cook? -Can you brush your teeth? -Can you dress yourself?	-Let us talk about personal care: -Are you able to take care of your personal needs? -Can you manage your shoes? -Can you tell the need to go to pass urine? -Can you feel when you touch the legs and feet? -Do you go to school or college?