Table 4.
Satisfaction
| Satisfaction codes | Quotes |
|---|---|
| Simply satisfied | I like it a lot. I think it's great. (#14 is a 71-year-old female, UC) |
| Fulfilled a need (knowledge gap), to learn about ACP | I'm satisfied because I've been able to learn something. (#8 is a 69-year-old female, UC) |
| What you taught me helped me a lot…Because you talked to me about a lot of things that I've never talked about. (#33 is a 69-year-old female, UC) | |
| Fulfilled a need (information gap), to receive ACP information | Yes, to learn about that because I didn't know about that, to know about the advance directives. I think it is good how you have it, a lot of information. (#61 is a 73-year-old female, TX) |
| Fulfilled a need to be prepared for ACP | I'm satisfied with it because already I've managed to rethink my illness, to have everything in order, papers for the doctors, my daughters and my friends that they know how I am. But, in between the advice you have given me…I understand what is being said. It's true, it's not a game, that they understand what they're asking, what they say, so that they're prepared for the day. One is anticipating, already talked to you and prepared. (#73 is a 60-year-old female, TX) |
| Fulfilled an expectation that ACP needs to be done, to take action. May be difficult to do. Perceptions that ACP actions are important | Well, I've learned a lot of things, you know, what you're supposed to do, get ready, and everything else. I wasn't aware of that. I mean, I knew that you had to do a will or something like that, but I had told my daughter and I thought that was enough, you know? But, it's better to be written down and that way there's no problems. It's better to be ready to not have problems. (#71 is a 80-year-old female, TX) |
| ACP is hard or difficult to do | You have shown me a lot and I am learning a lot. I didn't know about this, that there was help for people like this. It's important because I don't want to talk much about that…It's hard to talk about those topics. (#11 is a 78-year-old female, TX) |
| Understood importance of talking about ACP (talking) | I was satisfied with it….I think you do it pretty good…make them understand that it's best for them to have a living will. (#27 is a 62-year-old female, UC) |
| Understood importance of ACP (documentation) | I just need to sit down and just do it and maybe have my husband or a family member there, and sit down with me and just write it out, you know. (#7 is a 62-year-old female, UC) |
| It's taught me that it's a wise thing to do when it comes to documentation. (#69 is a 77-year-old female, UC) | |
| Helpful to me to talk to others | I'm very satisfied, you bringing up the topic itself about like the advanced directives and all that. I've been able to talk a little bit more about it to my family. But, hearing more about it, then it made me think about it more. (#21 is a 54-year-old female, TX) |
| Helpful to others, beneficial for them too | I'm satisfied for the simple reason that I'm participating in something that might be a program that will benefit many people. (#32 is a 65-year-old male, UC) |
| Helped me feel better | I'm at ease. I can sleep peacefully. I feel more peaceful now that you have talked with me. Yes, because now I'm prepared for everything. One is not closed off. (#73 is a 60-year-old male, TX) |
| Fulfilled a need to avoid conflict in the future | You provide a lot of good information that helps to make a good decision in the process. When I first found out about this, I think I realized how important it was to do it, because sometimes people don't realize that it's a good thing to do, like when you're healthy, not at the end when it's too late and you can't even speak for yourself. Mm-hm. It's helped me a lot because, well, this person went through a lot. Actually, sometimes even fighting with the doctors because the doctors did not want to honor her wishes. And that's what you have to do, you know? And sometimes it's very, very hard. I mean, you have to fight and fight and fight, you know? And, if you don't have the strength to do it, then they win and they do whatever they want to do, you know? So that's all it boils down to, to do it. (#12 is a 63-year-old female, UC) |
| Helped me to talk with doctor | I tell you that it was good, but…because at first I didn't understand, because I wondered, why are they asking me this and everything? Then, I talked with my doctor, what were they saying about this and that? And he explained it to me. And, I'm more satisfied. And so I told him…“Oh, okay.” But, I asked, “Why are they asking me these questions?” And, I told the doctor, “I didn't like these questions.” I didn't know why they were asking me these questions. “Did they want me to die now!?” And the doctor assured me, “no, no.” He told me what it was about and explained it to me too. “It's for you to know about what to do when you're going to die, or if you were alone and no one knows what you want, to tell your children who are not here now.” (#75 is a 54-year-old female, TX) |
| Helped me to talk with my family | It's helped me…the questions that you ask that I never thought of….[and] you know, that way they might open up. So, my daughter and I got together…just me and her, and then we talked to the other kids about it. (#13 is a 79-year-old male, TX) |
| Make sure follow wishes | I don't want something that's going to be done that I didn't want it to be done. That's what makes me think…I mean, I should do it because what if they keep me on a ventilator for two, three years, and that's not what I want. (#70 is a 59-year-old female, UC) |
| Getting closer to death | I don't want to talk much about that…because in life, death is getting closer. (#11 is a 78-year-old female, TX) |
| Addressed a need for ACP for Hispanic culture | I think it's very good. I thought it was a very good study. And I think that because Hispanic women have a tendency to use remedies or to depend on family members, maybe depend on children to the point of alienating them. So, I think that sometimes that something like this is very helpful. Very helpful…maybe in helping somebody else too. Maybe being able to share information with somebody else. Well, because I think that we need to see it. We need to have it in black and white because so many times we hear things and maybe we're not paying complete attention. And then, we think back, now well, what do I need to do about this? What did she say about this? So, being able to read it and have it in front of me, I think is very important. (#19 is a 66-year-old female, UC) |
TX, treatment; UC, usual care.