Table 2.

Topics with explanation as posted on the forum at the OFG

Day 1 Care in the hospital

Explanation A lot happens at the hospital in the area of supportive care: You receive medication for pain or nausea, you talk with psychosocial staff (such as a teaching assistant, or perhaps a psychologist), you get your food at the pediatric oncology ward, you have to get to the operation center in isolation, and so on. Would you like to share your experience in the hospital? This should of course be both positive and negative. You can talk about anything, about the hospital, both the clinic and the department(s), the emergency department, the operations center, the pharmacy, and so on. Question In the hospital, a lot happens in addition to the main treatment (giving chemotherapy, radiation therapy). What do you experience? And how do you feel about it?

Day 2 Care at home*

How do you manage things at home on the area of supportive care?

Day 3 Communication*

What do you think of the way people communicate with you?

Day 4 Provision of information*

Are you satisfied with the information you get and questions people ask you? And what do you think of the ways you get this information?

Day 5 Psychosocial care*

Psychosocial care is all about how you feel, emotionally and socially. How do you experience this type of care?

Day 6 Physical care*

How do you experience the physical medical care?

Day 7 Shared decision making*

Which role do you prefer to play in making decisions about supportive care during your treatment?

Day 8 Remaining topics*

Are there any other things related to the care for your illness that you would like to share?

^*Each question was posted along with an explanation. Above, only the explanation of day 1 is showed