Table 1.
Characteristics of Adults With Down Syndrome and Their Primary Caregivers
| Adult With DS | |
| Age in years (M [SD]) | 37.82 (7.46) |
| Range | 30.00–53.00 |
| Mental age in years (M [SD]) | 5.35 (1.36) |
| Range | 2–8 |
| Physical health (M [SD]) | 1.72 (1.11) |
| Range | 0–4 |
| Gender (n [%]) | |
| Female | 26 (41.9) |
| Male | 36 (58.1) |
| Ethnicity (n [%]) | |
| White, non-Hispanic | 62 (100.0) |
| Other | 0 (0.0) |
| Residence (n [%]) | |
| With Family | 42 (67.7) |
| Group Home | 7 (11.3) |
| Independent w/Support | 13 (21.0) |
| Primary Caregiver | |
| Age in years (M [SD]) | 62.98 (11.50) |
| Range | 22.00–85.00 |
| Ethnicity (n [%]) | |
| White, non-Hispanic | 61 (98.1) |
| Other | 1 (1.9) |
| Relationship (n [%]) | |
| Parent | 55 (88.7) |
| Sibling | 2 (3.2) |
| Other caregiver | 5 (8.1) |
| Time spent with adult with DS (n [%]) | |
| Once a month | 1 (1.6) |
| 2–3 times a month | 3 (4.8) |
| 4 times (weekly) | 2 (3.2) |
| 5–8 times (biweekly) | 11 (17.7) |
| Daily (or almost daily) | 43 (69.4) |
| Missing | 2 (3.2) |
Note. DS = Down syndrome. Physical health is the number of chronic physical health conditions (e.g., heart problems and diabetes) experienced by the middle-aged or older adult with DS.